Do you ever feel like you just want to get angry at Hydrocephalus? Just the mere thought of it being a part of you or the person you love’s life? I have to admit, there have been times when I literally despised the fact that I have this condition. I hated having a shunt and…
I woke up at 2:30 am. Came upstairs to find my husband sleeping on the couch in front of the TV, woke him up and went back to bed. Problem is, it is now 4:30 am and I haven’t been able to fall asleep. I tossed and turned and just couldn’t find my slumber again….
The picture I have in my head of what my life should be like as opposed to the way my life actually is, are two very different things. Opposite in fact… When I look around at my physical surroundings, I see clutter first and foremost. When I look inside at my thoughts, I see clutter…painstakingly…
I’ve been meaning to write this post for a while now. In fact, today I decided will be the day since my hubby has just taken the kids out and I’m home alone. So the timing is perfect. This was a bit of a scary week for me as my previous post indicates, but I…
When I woke up on Saturday morning with a headache and slept all weekend I should have known it couldn’t be anything serious. Even when I couldn’t keep my eyes open at work on Monday, I should have just gone home, popped some Panadol and had a good sleep. I’m sure my body didn’t get…
It’s easy to get dragged down into a whirlwind of despair and depression. This would be true of almost anything in life. Hydrocephalus is not an easily digested condition and having to explain it, almost on a daily basis ever since I released my book Hydrocephalus: Floating Faithfully, has become rather draining. (Don’t misunderstand because…
My friend (Gaurav Sharma) who, every morning on his way to work, throws out some bird seeds to the birds at the train station. When I first saw him doing this, I commented on how nice it was of him to do. His response “I’m getting rid of my sins man“. I thought about this…
I feel disheartened…almost helpless. Ever since I was diagnosed with Hydrocephalus in 2007, I’ve felt like I’m fighting an uphill battle. It’s not with the condition so much, which has become a part of me and that I accept. But, with the medical professionals, I have to depend on for care. I struggle to understand…
Understanding what Hydrocephalus is can be a little confusing, overwhelming or just plain and simply do your head in. I remember when I first saw the word on a scan result I had done. I remember going “Huh? Hydro what?” Since that day, now just over 8 years ago, I have learned as much as…
I read a post on Facebook the other day, in one of the groups I belong to, that just angered me more than anything else. It wasn’t even the fact that there seems to be a general belief that people with Hydrocephalus are faking their symptoms. It was reading a comment from a parent who…
