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Skyewaters

Skyewaters

Hydrocephalus And Brain Injury — Advancing Awareness And Patient Advocacy.

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Skyewaters
Skyewaters
Hydrocephalus And Brain Injury — Advancing Awareness And Patient Advocacy.
  • “Enjoy life Today because Yesterday is in the past and Tomorrow is never promised…”
    When Life Happens...

    “Enjoy life Today because Yesterday is in the past and Tomorrow is never promised…”

    BySkyewaters March 5, 2016May 1, 2018

    These words are what I’ve been saying to myself on a continuous basis since a few days ago. I am a natural worry-head, procrastinator and generally think too far ahead into the future. I will be the first to admit, this has driven my stress levels up and on one too many occasions, has threatened…

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  • Who will take care of me when I can’t?
    Hydrocephalus

    Who will take care of me when I can’t?

    BySkyewaters February 3, 2016May 1, 2018

    A concern most people have…I’m sure. Something, which insurance companies prey on…and, in hindsight understandably so (I’m sure they would justify it with “it’s the risk we take at the cost of making our money”).  With that said though, no insurance company will touch you with a feather if they know you have a condition…

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  • Hydrocephalus

    ETV Failure Guinea Pig

    BySkyewaters January 27, 2016May 1, 2018

    The past weekend was one for the books.  I had another episode of sleeping the days away.  I was going to write this post with a morbid feel to it…because that’s how I’ve been feeling the last few days.  Then, a little while ago, I decided to hell with it!  I won’t.  Because doing so…

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  • How do you know that your baby is unwell?
    Hydrocephalus Voice

    How do you know that your baby is unwell?

    BySkyewaters January 15, 2016May 1, 2018

    A question you will be able to answer…in time. It’s not going to be easy to get to that point but get there, you will. I also know that it’s not easy seeing your child in agony or pain. I wish that on no parent, however, it might just be the only way for you…

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  • “Are people with Hydrocephalus unsociable”
    Hydrocephalus

    “Are people with Hydrocephalus unsociable”

    BySkyewaters January 6, 2016May 1, 2018

    A search term used by someone who stumbled across my blog… It got me thinking and wondering why someone would type that particular string of words into a Google search. A few weeks ago, I had a discussion with a colleague who, after hearing about my book, Hydrocephalus: Floating Faithfully, wanted to meet up with me…

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  • Hydrocephalus : Some scary situations are better faced with someone else walking the journey alongside you.
    Hydrocephalus Voice

    Hydrocephalus : Some scary situations are better faced with someone else walking the journey alongside you.

    BySkyewaters January 1, 2016May 1, 2018

    The arrival of a new baby, a new member of your family, is one of the most exciting times in a new mother/father’s life. I remember when I was pregnant. There was one constant prayer for each one of my children from the time of knowing of their existence. I wanted nothing more than for…

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  • Hydrocephalus take a number
    Hydrocephalus

    Hydrocephalus take a number

    BySkyewaters December 27, 2015May 1, 2018

    Earlier this week, my Hydro symptoms reared its ugly head. I woke up at 4:30 am with a throbbing headache, mainly in my eyes…I was miserable and felt very lethargic. I made it through work that day and hoped it would ease up. Lasting all day with constant nausea and dizziness, I was only too…

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  • For all those who will be spending Christmas in hospital…my heart goes out to you.
    Hydrocephalus

    For all those who will be spending Christmas in hospital…my heart goes out to you.

    BySkyewaters December 19, 2015May 1, 2018

    As Christmas is on the horizon, I think of all the parents and children who are going through a challenging time with their Hydrocephalus. For all those who will be spending Christmas in hospital…my heart goes out to you. However, I pray that the time together will be the silver lining for you. I pray…

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  • It’s one week to go to Christmas.  Have you found what’s most important to you?
    When Life Happens...

    It’s one week to go to Christmas. Have you found what’s most important to you?

    BySkyewaters December 18, 2015May 1, 2018

    I’m sitting this morning and reflecting on how things have changed since I was a child. There’s been a definite shift in how I see or view what’s important at this time of the year. I’ve crossed paths with so many people…people from different backgrounds, circumstances and beliefs. A time when so many celebrate the…

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  • Shunt vs ETV
    Hydrocephalus

    Shunt vs ETV

    BySkyewaters December 12, 2015May 1, 2018

    When I was first diagnosed with Hydrocephalus, it was a whirlwind time filled with emotion. I can’t really say that I registered much until after my first operation, which was literally within a few days. It was a little surreal…to say the least. I had my shunt placed on a Thursday and home by Saturday….

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