Faking being OK when you’re physically not, is far harder than faking being sick.
As someone diagnosed with Hydrocephalus and living with a brain injury, this is a sore point, obviously. People don’t necessarily […]
Brain injury wreaks havoc on relationships so protect your heart
Finding the balance, living life with hydrocephalus and brain injury, is tricky. Relationships take strain and fall apart. The loss
Cognitive Impairment: Advice For Dealing With This Life Changing Event
My top piece of advice in this instance, NEVER give up on yourself! I feel like I’ve been neglecting my
Hydrocephalus Awareness: What you need to know
What is it? Hydrocephalus is an incurable neurological condition that affects millions of people across the world. It does not
The unexplained is complicated, and neurosurgeons don’t always have the answer…
Let’s be honest: They are human too (despite some of them having a god-like complex). They can, and do, make
Brain injury changes the trajectory of your life…
That’s it for me. I’ll be closing my social media accounts and blog over the next few weeks. But, before
Shunts are not for everyone but neither is brain surgery..!
Shunts save lives; they also cause more problems for those who need them, when they fail to work as intended.
Lifetime warranty. Lifetime guarantee…
What is it about the fact that Hydrocephalus is incurable that people don’t understand? More specifically, that treatment options i.e.,
When there’s a “kink” in the armour….
Shunts, a bone of contention for many people diagnosed with Hydrocephalus. I would almost go so far as to say
Will you help get the conversation started..?
We Endure because we have to. We find ways to cope, survive and get through by being Resourceful. We gain
Hydrocephalus…It’s not OK!
A diagnosis of Hydrocephalus, caused through no fault of my own, is something I can live with. I’ve had to
Brain injury: Putting yourself first is never a mistake
When life is turned upside down after a brain injury, it’s more important to practice self-care than ever before.
A brain bleed wreaks silent havoc on your life — What you need to know!
Understanding the profound impact of brain bleeds and their treatment on cognitive functions is critical for those affected. The complexity of brain injuries, each unique to the individual, underscores the importance of tailored approaches in rehabilitation.
What would you do to give yourself peace of mind?
There are no guarantees with this condition. But you do what you can, with what you have.
Hydrocephalus
5 things to remember to improve your life after brain injury: Redefining your new normal
Self-care is essential, especially when you live with a brain injury. The invisible nature of this disability leaves you at a societal disadvantage because others cannot understand what they cannot see.
Shunt Over-Draining (With a Patent ETV): From Symptoms To Surgery. What You Need To Know.
Learn how shunt over-drainage can cause headaches, nausea and dizziness—even with a patent ETV—and why valve replacement with a SiphonGuard was needed.
Pressure sensors are a godsend, but getting one isn’t easy
Non-invasive brain sensor to measure intracranial pressure. From reactive to proactive!
Is it my shunt, or something else..?
While you feel like crap, you convince yourself you’re imagining it. And, there’s probably nothing wrong.
Technology at the heart of an incurable brain condition
One can almost not imagine a world without technology these days. So, it makes sense that advancements in the medtech
Hydrocephalus: The silent assassin
Hydrocephalus does NOT discriminate. There’s no single cause and more people are diagnosed with it, than you, or I, could
Be the change you wish to see in the world or, at the very least, be part of it.
I didn’t set out to be part of change. I also didn’t aim for a possible improvement to the current