The unknown is scary…this is true of any situation in life. Having a condition like Hydrocephalus, can either make or break you…this too, is true of any chronic illness life throws at you. I’ve had moments of weakness where I’ve been ready to give up, moments where I’ve literally begged and pleaded with God to…
At times, I get a slight throbbing feeling at the right bottom side of my head…I became aware of this a few months ago, though I thought nothing of it at first. Then, a few days ago, it nagged a little more than usual. I visualised this spot to be where my ETV possibly is,…
I can’t help feeling a bit frustrated at the moment. I’m trying to learn/study and am starting to feel like a complete failure or more precisely, like an idiot. I know that I have probably been the hardest on myself all these years and, even though I have moments where I remind myself to just…
For a long time I’ve convinced myself that my Hydrocephalus is a “problem“. I have had doctors tell me that I don’t have it only to have the next one contradict it with confirmation that I do. Being told things like “You could go into a coma” has been the worst yet. In all honesty,…
Family…the units we are born into, without any choice. From the time we are born, these people teach us about love and life in general. They are the ones who build our foundation and help us plant our roots. Some we love, some not so much…it really doesn’t matter because the blood coursing through our…
This will probably be the final post on the ETV Failure Guinea Pig topic from me (unless something significant happens and I live to tell the tale)…I have been patiently waiting to see the Neurosurgeon I consulted with last year to discuss the sleeping episodes I’ve been having. I was hopeful that he would be…
In the final post on Gaining Insight, I’ve decided to post the responses I got from my children. I have 3, 2 boys and 1 girl aged 6. She is too young to understand all of this and yet, she played an important part in the last 3 operations I had. I was 5.5 months…
Work…the place we spend the majority of our precious time. Colleagues…the people we spend more time with than our own family. Just how important do you regard them to be? In my opinion, we need at least someone who knows that we have this condition at work. A person/s who has your back in case…
Some days, much like today, I just feel like giving up. If I were connected to a life support at this moment in time and were able to, I would pull the plug myself. I’m not in pain (Thank God) but can’t say I feel good either. I woke up this morning at 4 am…
For a long time, since diagnosis, I’ve known that my Hydro journey would be my own. It’s crazy but despite knowing this, I can’t help feeling a sense of abandonment by the people who say they love/care about me. Is it wrong for me to feel as if this VERY BIG THING in my life…
