Some “triggers” aren’t necessarily recognised as anything serious by the medical professionals we deal with. If this is the case, are we meant to ignore them too? Take for instance weather changes such as barometric pressure. Even as people with Hydrocephalus, it doesn’t affect all of us in the...
Hydrocephalus
Hydrocephalus : Patience while you wait…
It feels like waiting is one of the things you do a lot of with a condition like Hydrocephalus. Being a person with little to zero patience (I do try though), it can become quite “painful” at times. In saying that, the comparison cannot be drawn between just your...
Hydrocephalus: Sharing the joys of upcoming brain surgery and a lightbulb moment.
A while back, I wrote a post titled, “When the thought of brain surgery “excites” you“. It would probably seem like a strange thing to write about but the preconceived ideas of a title like this, at first sight, couldn’t be further from the main reason behind it. Walter...
Hydrocephalus: What does an angry brain look like..?
Being bounced around the system, regardless of where in the world it is, is no fun at all. I sometimes think that people assume if you look fine, you must be fine. Having Hydrocephalus has certainly made me feel this way, on one too many occasions, regardless of who the other...
Hydrocephalus: Figuring out the next move…
In my last post, I mentioned that I had something to be grateful for and realised since then, there’s actually quite a few things, given my current situation. Firstly, I’m still breathing. That in itself is reason enough to be grateful. My job has kept my mind occupied and...
Hydrocephalus: Same shit, different country…
There seems to be a universal law when it comes to the way we are treated as Hydrocephalus patients. (Or, I’m just being overly sensitive – you be the judge of that). I know for a fact that, what I’ve experienced below and so many times before, is not...
Hydrocephalus: Category 1 triage – Not sure how I feel about that…
A few weeks ago, I wrote about the visual disturbances I’ve been experiencing. Something, which at the time, freaked me out (naturally). I went to the eye clinic upon my GPs insistence and walked away with a clean bill of eye health. However, I was told a referral would...
Hydrocephalus: Do you ever downplay your condition? If you do, do you think it affects how others react or respond to you?
Some would say Hydrocephalus is not a big deal. I know quite a few people who have actually said this to me but, I also know quite a few who would claw your eyes out for uttering those words. (Ok, maybe not that extreme but they’d definitely take offence). ...
Hydrocephalus: Do you ever wish you could just go back to before you knew you had Hydro?
I know that there are many people who are born with Hydrocephalus so, this question doesn’t really apply in that instance. It’s more posed at people like me, diagnosed at age 29. I had learnt all the basic skills I needed by then, had no difficulties of note and...
Hydrocephalus: Eye trouble and the stress of not knowing…
When you go from care (practically non-existent) to doctors using words like: “You are high risk”, “This is serious”, “This is important to get checked out, sooner rather than later”, it leaves you feeling unsettled. The only way I can think to best describe it is, being abused –...