With my last post about Hydrocephalus being the 3rd party in your marriage, this one seems quite apt to follow. This condition does not play fair. It robs you of so much: time, relationships, money, memory, sanity…so much. But it’s a union where you don’t get to call it...
Hydrocephalus
Hydrocephalus: The 3rd party in your marriage
For better or worse…in sickness and in health…till death do us part… When Hydrocephalus made itself known and stepped into my life, nothing could have prepared me for the road that lay ahead. Age 29, married, 2 kids and in the prime of my career…I would never have thought...
Hydrocephalus…It’s not OK!
A diagnosis of Hydrocephalus, caused through no fault of my own, is something I can live with. I’ve had to learn so much in order to cope and, more importantly, accept this new way of life. It’s a constant learning curve! I don’t exactly have a choice. None of...
Hydrocephalus: Are doctors biased?
A hydro warrior asked me this week: “If you’ve ever gone for a second opinion, have you ever felt the second opinion judging you because of previous treatment you’ve received?” I had to smile at this question because not only have I sought a second opinion but I’ve lost...
Hydrocephalus: Losing oneself without even knowing it…
Something no one can prepare you for, is the moment your whole life changes. It doesn’t matter what it is really…you can read an article about something that happened to someone else and go, “Oh! That’s just so sad…” but you move on and forget. Then, life happens to...
Hydrocephalus: Shame on you…
When I wrote We are not faking, I meant what I said. What I didn’t know at the time was how much of a lifeline these words would become. A lifeline not that someone else throws your way but one that you need to remind yourself of, more than...
Complex, complicated and sitting on the fence
Complex and complicated, two words that have been used, my entire life it seems, to describe any medical condition I’ve had over the years. My parents have told me that the reason for sending me to live with my grandparents at a very young age was because I was...
Hydrocephalus: A muddled state of affairs!
How quickly, or often, does your brain go into a muddled state? I find that having an idea is one thing, especially a good one but, when it comes to delivering the pitch, conveying it to someone else…I totally end up like a cat caught up in a ball...
Hydrocephalus: Just another detour…
There are moments in your life where you have no control over what happens to you, so many, too many to list. We all have them, we all go through “stuff” that either make us or break us. Situations which require us to go on a journey, into the...
Hydrocephalus: 10 Years Post ETV (brain surgery)!
It almost feels surreal. There are timeline estimates placed on the length of time a shunt or ETV could take before it fails, the likelihood decreases (or so I’ve been told). They have a lifespan in terms of success vs failure rate. Generally, 2 years for a shunt and...