Hydrocephalus can feel like being on a journey without a destination

There’s no manual for surviving, or living with, hydrocephalus. The effects of the condition, and the consequences of treatment options, touch every aspect of a person’s life. Also, we all experience the condition differently. I still maintain; How YOU feel about YOUR own journey, is up to YOU. Don’t let...

The unexplained is complicated, and neurosurgeons don’t always have the answer…

Let’s be honest: They are human too (despite some of them having a god-like complex). They can, and do, make mistakes but they also save lives. The difference: A surgeon who doesn’t make the effort, gives up because it’s too hard, or simply dismisses your concerns. VS A surgeon...

Reclaim your power

It’s easy to feel powerless when you’re diagnosed with an incurable and invisible condition like Hydrocephalus. And, having to learn to navigate life with a brain injury. When life changes within the blink of an eye and your circumstances are unrecognisable. When the person staring back at you in...