Yesterday Facebook notified me of Thanksgiving. I personally have never celebrated it but when I saw it with the suggestion to wish people on my Friends list…I thought “Why not?“. It doesn’t matter whether or not I celebrate a special day to be thankful. What matters is what it signified for me. It made me…
A defining and disappointing aspect of having Hydrocephalus is when those closest to you disregard the effects of the condition. I wonder if there comes a time when family members in the same household possibly just reach a point where they’ve had enough. Enough of your moaning, complaining of how bad your headaches are (especially…
First big change In time, we made plans to emigrate and ended up leaving South Africa in February 2012, Kathryn was 22 months old. She had her 2nd birthday in New Zealand and stayed home with my husband who looked after her for the first few months of us getting settled. When my husband found a…
There are days when I really love my job but days like today, I feel like a complete waste of space. I know others appreciate what I do and I love nothing better than to alleviate the little stresses in my colleagues daily work life. In fact, I get satisfaction from knowing that doing a…
Once you, or a loved one, receives a diagnosis of Hydrocephalus, it’s easy to get swept up in the whirlwind of emotions and lose track of life a bit. One thing I can almost guarantee is the support you will come to need, especially when you don’t know which way next. We all have…
I am a mother of 3, 2 boys (15 and 12) and a daughter (age 6) who has Selective Mutism also known as SM. I hadn’t heard of this before, had no clue about it but have recently decided to start blogging about our journey. It’s a topic which needs attention and the frustration and helplessness…
Parents, You are the example your child will live by in time to come. I know for a fact that I don’t need to be telling you just how scary it is not knowing if something is wrong. You’ve been there/are there and know exactly how torturous it is. However, your child will see how you…
This is how I feel right now. I had a follow-up consult today with the NS who ordered my recent MRI. And, unlike our last consult, we both remained calm and open to suggestions of a way forward. I was thankful for this…briefly. The bottom-line of it all is: He still doesn’t feel that my…
There are so many conditions, disorders, diseases, etc in the world affecting people around us. Most of these we have or will never come into contact with simply because those closest to us remain unaffected…life carries on in this case. However, Selective Mutism is something which has entered my life and just how I deal…
The cost of medical care as mentioned in a previous post is just ridiculous. I’m not going to talk this point to death but I do feel that there is room for discussion. At my last consult, after being told off, I sort of lost track of the conversation as I licked my internal wound, while…
