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Skyewaters

Skyewaters

Hydrocephalus And Brain Injury — Advancing Awareness And Patient Advocacy.

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Skyewaters
Skyewaters
Hydrocephalus And Brain Injury — Advancing Awareness And Patient Advocacy.
  • Hydrocephalus : Again with the antidepressants
    Hydrocephalus

    Hydrocephalus : Again with the antidepressants

    BySkyewaters February 20, 2017February 21, 2017

    I’ve started thinking there’s no point in fighting with the doctors I’ve dealt with (for now anyway). No matter how convinced I was at the time of seeking help again since 2015 that there was a problem, it’s beside the point right now. Truth be told, after the series of consults that followed, I became…

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  • Imagine having a way to communicate your invisible illness to those around you visually…
    Hydrocephalus | When Life Happens...

    Imagine having a way to communicate your invisible illness to those around you visually…

    BySkyewaters February 16, 2017

    This morning I woke up at 4 am with the start of an excruciating episode of stomach pain (only too familiar to me). I lay waiting to see if it would escalate while praying that it wouldn’t. However, that was a futile prayer because sure enough, it was one for the mother load of episodes….

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  • “What we can do?”
    When Life Happens...

    “What we can do?”

    BySkyewaters February 10, 2017May 23, 2018

    Yes, you read that right. My colleague and friend, Gaurav Sharma, utters these words on a regular basis.  We’d catch the train together some mornings and “complain” about work or a particular situation (As one does from time to time).  After getting it all out, he would usually end the conversation with a shrug of…

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  • Hydrocephalus : Being pregnant and having brain surgery
    Hydrocephalus

    Hydrocephalus : Being pregnant and having brain surgery

    BySkyewaters February 7, 2017May 23, 2018

    When I was diagnosed with Hydrocephalus, my husband and I had a pre-op consult with the surgeon, who discussed my upcoming shunt surgery.  We talked about what to expect before, during and after the operation.  More importantly, we told him that we were planning on having another baby and questioned whether this would be a…

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  • Hydrocephalus : There’s no such thing as a dumb question
    Hydrocephalus

    Hydrocephalus : There’s no such thing as a dumb question

    BySkyewaters February 3, 2017May 23, 2018

    There are times when I go through some of the various posts on Facebook and can’t help but feel my tummy flip or cringe at what some people say to others. This happens on various posts and it doesn’t necessarily have to be only in the Hydro groups. But, I’m writing this today with those…

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  • We are not meant to live forever
    Hydrocephalus | When Life Happens...

    We are not meant to live forever

    BySkyewaters January 31, 2017May 23, 2018

    There’s something I’ve always read and seen but never fully paid attention to.  When we die, we leave this world just as we came into it, with nothing.  All our possessions and wealth, no matter how big or small will be left behind. As a human race, we seem to be constantly wanting more wealth,…

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  • Hydrocephalus : Do you think that your condition has consumed you?
    Hydrocephalus

    Hydrocephalus : Do you think that your condition has consumed you?

    BySkyewaters January 24, 2017May 23, 2018

    I mean all consuming…thought, word and deed? In all honesty, if I had to answer that for myself, I would have to give it a BIG YES!. There are days when I tell myself just to let it all be and carry on as if nothing is wrong. This would actually be easy enough to…

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  • Hydrocephalus : It’s the little things that count…
    Hydrocephalus

    Hydrocephalus : It’s the little things that count…

    BySkyewaters January 12, 2017January 13, 2017

    Have you ever looked at the next person, listened to their story and thought “Damn, I thought my situation was bad…“?  Well…I have in more ways than one and on more than one occasion too. As an example, last year, a friend of mine was diagnosed with Cancer.  Since I don’t live in the same…

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  • The depressive state of Hydrocephalus
    Hydrocephalus

    The depressive state of Hydrocephalus

    BySkyewaters January 10, 2017January 21, 2017

    Depression is a curse and in some instances, sadly fatal but it doesn’t have to be. It can be very debilitating and make you feel like you’ve been severed at the limbs (with a blunt object), from the minds perspective.  It’s easy, in this frame of mind, to believe that there is no hope, no…

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  • Hydrocephalus : Do you regard it as a disability?
    Hydrocephalus

    Hydrocephalus : Do you regard it as a disability?

    BySkyewaters January 9, 2017

    A little while ago, I was asked by Anna Adams of the Rolling With Spina Bifida FB page, to write a story about my life with a disability for their website. Reading her request, made me sit back and think about it for a long while, having been caught off-guard. I have no problem writing about Hydrocephalus and how…

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