Does the world turn its back on you, once you’re diagnosed with an incurable condition..?

I know not everyone will agree with this post, and I’m OK with that. But, I’d like to believe that some of what I have to say, will resonate with people who have actually experienced it. For those who have, I hope this gives you a voice… My humble...

Onwards and upwards!

If life has taught me anything, and more specifically Hydrocephalus, it’s that you simply cannot give up. You can get tired of the fight, yes (repeatedly!). You can take a break, for however long you choose. Ok, realistically…for as long as Hydrocephalus gives you a pass…but I think you...

What would you do?

O for “Oh no!”, “Onward and upward”, “Over it!”? Whatever it is, that’s where I’m at. Moving on should get easier, especially after consulting with so many specialists but… It’s as trying now as it was when I first started out! 3 countries later and I appear to either...

Hydrocephalus: What’s the reason why doctors “refuse” to help patients?

I remember a time when things were so simple, medically speaking.  You felt unwell, went to the doctor and they actually helped you.  Illnesses like Cancer, which everyone knows has a slim chance of survival, depending on the stage it’s at (but it’s possible), were/are accepted for the fatal...