It seriously pisses me off! Sorry for my language but I’m feeling so frustrated not only right now, but for all the other times before. And, all the times I know are still to come. I’ve explained on so many occasions that I’m not good with directions and having short-term memory issues, on top of…
Can you honestly say that the circumstances surrounding the death of Travis Shumate have not affected you? Or at the very least made you think..? Whether you have Hydro yourself or someone you love has it, really doesn’t matter. I’m sure many of us have hit a level of discomfort and have even wondered “Can…
Intermittent : “Occurring at irregular intervals; not continuous or steady” Working in IT support for the last 20+ years, has definitely had its advantages. Take for example the word “intermittent“, something used more often than not when faced with an unexplainable technical issue. For me to understand this term in the context of my Hydrocephalus…
My past experience has been somewhat different from where I am now. It almost feels like it could be worlds apart…in fact, that’s exactly where it’s at. Better..? Or worse..? Hmmm.. I left my home country, a few years after diagnosis, shunt surgery and eventual ETV, in search of and hopeful of better medical care…
Past When I was first diagnosed, at age 29, I was a full-time employee. Therefore, my manager at the time was with me from the start of my Hydro journey. I remember clearly when I got the results from my CT scan and what happened after discussing the findings with the Neurologist (if only my…
As a person living with Hydrocephalus, be it yourself or someone close to you affected by this condition, it’s easy enough to understand the medical terminology. Well, at least better than anyone who is just an “acquaintance” of this condition. I remember when I was first diagnosed and heard the word Hydrocephalus. It was a…
For a long time, since diagnosis, I’ve known that my Hydro journey would be my own. It’s crazy but despite knowing this, I can’t help feeling a sense of abandonment by the people who say they love/care about me. Is it wrong for me to feel as if this VERY BIG THING in my life…
A search term used by someone who stumbled across my blog… It got me thinking and wondering why someone would type that particular string of words into a Google search. A few weeks ago, I had a discussion with a colleague who, after hearing about my book, Hydrocephalus: Floating Faithfully, wanted to meet up with me…
Understanding what Hydrocephalus is can be a little confusing, overwhelming or just plain and simply do your head in. I remember when I first saw the word on a scan result I had done. I remember going “Huh? Hydro what?” Since that day, now just over 8 years ago, I have learned as much as…
