We Endure because we have to. We find ways to cope, survive and get through by being Resourceful. We gain Strength through and from it all, not by choice but, because there is none… People say: “You shouldn’t let your circumstances define you…” Hmmm…I say, there are times when...
Articles with the Tag Invisible illness
Ever feel like you’re falling apart…literally?
I feel like I’m being “chipped” away piece by piece. Apparently some body parts you can live without, who knew? Some surgeries improve things and others bring more complications than you bargained for. This has been a consistent (almost rebellious) communication from the doctors I’ve spoken with over these...
Onwards and upwards!
If life has taught me anything, and more specifically Hydrocephalus, it’s that you simply cannot give up. You can get tired of the fight, yes (repeatedly!). You can take a break, for however long you choose. Ok, realistically…for as long as Hydrocephalus gives you a pass…but I think you...
What would you do?
O for “Oh no!”, “Onward and upward”, “Over it!”? Whatever it is, that’s where I’m at. Moving on should get easier, especially after consulting with so many specialists but… It’s as trying now as it was when I first started out! 3 countries later and I appear to either...
Forget you have it…
Realistically, on a scale of 1 to 10, how easy would it be to forget you have an incurable condition? More specifically, Hydrocephalus. I’ll admit, there are days where my memory issues come in handy in this regard. To carry on with life, as if nothing is wrong, is...
The devil is in the detail
Have you ever had a consult with a specialist for Hydrocephalus and walked away feeling like they simply didn’t listen? Or, maybe you read their report after your consult, and think: “Thats not what I said!”, feeling deflated by the same token. If you have, you are not alone!...
Looking after your mental health
Mental health challenges, are nothing to scoff at. I do believe that most people experience something (or even a few) that adversely them, at one point or another. I’m not ashamed to say I have my fair share of ups and downs. It’s never easy to deal with and,...
Hydrocephalus: Nothing about this condition is easy…
Anyone who has followed my blog and knows my journey, would have an understanding of where I’m at. But, in the interest of those who aren’t aware, I’ll try to explain. After last week’s vision loss and subsequent headaches, I’ve had time to think (aka, silently freak out!). My...
Hydrocephalus: Would they even know what to do?
Do the people in your life, those closest to you, know what to do if you need help? How knowledgeable are they when it comes to Hydrocephalus and you? Honestly, I have the utmost respect for parents who fight fiercely for their children with Hydrocephalus and are so in...
Hydrocephalus: Shame on you…
When I wrote We are not faking, I meant what I said. What I didn’t know at the time was how much of a lifeline these words would become. A lifeline not that someone else throws your way but one that you need to remind yourself of, more than...