Before the start of this year’s awareness month, I didn’t have a plan of what I would do. However, a few days before, I felt a growing need inside of me to spread awareness simply because I recognise the need to shine a light on this invisible illness. It...
Articles with the Tag Invisible illness
Hydrocephalus the elitist club…NOT!
Over the years of dealing with doctors, some have made me feel the need to (overly) explain why and how I developed Hydrocephalus. Almost as if to justify it… Granted it’s normal to be asked this at a first consult with a new doctor to give them the context...
Hydrocephalus: I reckon having someone in your corner is better than the alternative.
If you’ve been following my blog, you’ll know the challenges I’ve faced/am facing, just to be heard. Being told at my last consult, which always feels like it’s the last, “We’re just not going to operate on you because, you look fine and your tests show that too“. Going...
Hydrocephalus 10…Celeste 0
I’m not a very sporty person (evident from my physique)…I kid you not. However, in any competition I find myself up against, I will admit to being a bit of a sore loser. I might not be an extremist in this regard but I do feel the pangs of...
Imagine having a way to communicate your invisible illness to those around you visually…
This morning I woke up at 4 am with the start of an excruciating episode of stomach pain (only too familiar to me). I lay waiting to see if it would escalate while praying that it wouldn’t. However, that was a futile prayer because sure enough, it was one...
Hydrocephalus : Do you regard it as a disability?
A little while ago, I was asked by Anna Adams of the Rolling With Spina Bifida FB page, to write a story about my life with a disability for their website. Reading her request, made me sit back and think about it for a long while, having been caught off-guard. I have no...
Invisible illness vs looking for attention
This post is closely related to one of my previous Hydrocephalus posts, We are not faking… My teenage son made a comment yesterday and said to me. “Why do you post stuff like that on Facebook? It looks like you’re…looking for attention“. (To put it into perspective for you, there’s...