When supporting someone with an incurable condition, there’s a level of trust that comes with great responsibility. It requires vigilance, and an awareness, as if you were protecting your own life…Without this, they might as well be fighting their battle in isolation… While recovering from surgery, I had a few nurses who spoke to me…
I repeat this as soon as I catch myself being too hard on the one person who doesn’t need it: ME Brain surgery does not leave you unscathed…the after effects are real and, under the right circumstances, can have a negative effect! It’s what you do after the fact that matters most… Celeste A. Marriday…
It’s been 3 weeks since I had a VP Shunt placed. There are spots on my skull where it feels like my head has been placed in a vice grip, (stealth machine, to be exact, according to one of the nurses when I asked why I have a covering above my left eye). This video…
Shunts save lives; they also cause more problems for those who need them, when they fail to work as intended. I believe each person with hydrocephalus is entitled to feel the way they do about their treatment option, regardless of what that may be. Our experiences differ and, depending on your own individual circumstances, you’ll…
What is it about the fact that Hydrocephalus is incurable that people don’t understand? More specifically, that treatment options i.e., brain surgery is NOT a cure. It’s as tiring for me to continuously say, as it is to hear or follow someone else’s train of thought, on the matter. More so, when said person/s nod…
I wrote this a few weeks ago, it was meant to be my way of motivating anyone who needed it. But, I never actually got around to finishing it. Now, lying in a hospital bed (yet again), I find it more suited to my own situation. Current state: I called my neurosurgeon’s room yesterday and…
How do you come back from brain surgery that leaves you feeling like you’re slipping away? Like you’re stuck in a body that simply won’t physically move, yet somehow, deep inside of you, there’s a part dying to escape the torture chamber! It’s not the life I’m used to. It’s not the life I want….
When glass is shattered, you can try to piece it all back together, however, the cracks will show, altering the appearance. And, any tiny shards you may have missed, will undoubtedly leave some holes and weak spots. C. A. Marriday The risk of inaction As someone diagnosed with Hydrocephalus, we are often advised to remain…
In one of my previous posts: “How I cope is much the same as being like a duck”, I talk about the best advice I was given by my ex-manager Ian, after my diagnosis and first brain surgery. I struggled at work, to get back to a version of my former self (who seemed nonexistent)….
She stood her ground and so did he. They are warriors of a different kind. In the days of war (I can only imagine), facing an unknown opponent, you have no idea what their strengths or weaknesses are. Nor, do you know, what tactical moves they will use to defeat you. You either fear them…
