Surgery..again! It’s just over 3 months since my repeat ETV (brain surgery #6). I stared at a similar photo to the one at the top of this post last week, in my Endocrine surgeon’s waiting room. Having just had a consult with him and agreeing to go ahead with my right-sided hemithyroidectomy (surgically removing half…
It’s not always the same fight but regardless, I’m tired. To quote a fellow Hydro sister: “I know I am here for God’s purpose and He knows my days here yet, I am tired of having to force my physical body to do what my spirit wants to do.” It’s ironic how much I can…
It’s been a while since I’ve managed to string two sentences together, read on to find out why… My repeat ETV surgery on 4 May 2021 and recovery have been unlike anything I’ve experienced before. My expectations were not high yet, truth be told, I had a feeling something might go wrong. Exactly what that…
Between my post-op consult on Monday and listening to my Dad talk about his Last Will and Testament (following his COVID-19 diagnosis and recovery), I’ve been flung into the throws of a cry fest. My brain feels stuck…figuratively and literally! Warning: Vent ahead – Apologies in advance if this post is all over the place,…
It’s been harder than I anticipated. Maybe I rushed it. Maybe I didn’t rest enough. Or, maybe this time, brain surgery has taken its toll on me. I’ve been feeling like I need to be stronger than I am, in all areas of my life: physically, mentally and spiritually. Thinking that if I’m not, somehow,…
Mahatma Gandhi: “Be the change you wish to see in the world.” Regardless of whether you’re advocating for yourself or someone you know/in your life who has Hydrocephalus, there’s a teachable moment, no matter how big or small. While I was in hospital a few weeks ago after my repeat ETV surgery, ICU specifically, I had…
My hydro sister Cindy, phoned a day before my surgery and asked if she could say the Hebrew prayer for healing, for me. I happily accepted. Then she asked me to do something before the operation starts: “Ask the surgeon to take a moment of silence“. It reminded me of Lenox Hill, a documentary of…
Gert Tollesson, aka Dr “O”, is the 15th specialist I’ve consulted with regarding my Hydrocephalus. Most of you, who follow my blog, will know the uphill battle I’ve had to climb to finally get to him! And, thank God I have!!! Words I would use to describe him: Kind, Caring, Humble, Compassionate, Empath, Knowledgeable, Experienced,…
A few days ago, I was faced with a heavy burden of having to fork out just shy of AU$5000 up front, which I normally keep under the mattress for a rainy day, like everyone else (sarcasm intended). It required an added level of perseverance and resourcefulness. Let’s just say, the financial strain of brain…
It’s not an easy decision to make. It might seem obvious but reality dictates otherwise. And, unfairly so at times… I’m at a crossroad, one I’ve faced before, so many times. I finally found a surgeon who thinks outside the box and agrees my ETV is partially blocked. That leaves me with no other choice…
