When it comes to Hydrocephalus, I don’t underestimate anything, especially not what I’d do for myself. Not everyone will agree with the way you handle this condition, not everyone will understand your motivations or your disappointments. Truth be told, for some of us, this condition is less of a...
Hydrocephalus
Hydrocephalus: Some conversations aren’t worth having…
Is it really worth having a conversation with someone who doesn’t understand what Hydrocephalus is all about? (I’m not talking about Awareness or education because that will always be worth it). Someone who doesn’t get that this is a serious condition, requiring immediate action, in some cases? Someone who...
Hydrocephalus : Do you limit yourself when it comes to learning?
Fear…a driver for most (negative) things in life. It’s certainly blocked me from doing a few things. In fact, had it not been for fear, I now know that nothing (physically) would have happened to me. But, I stopped myself before I could reach that point. When I started...
Hydrocephalus: The noisy upstairs neighbour…
A few years ago, my family and I made the mistake of moving into a two storey house with another family. (I don’t recommend this to anyone unless you have what it takes. It’s the kind of situation that can make enemies out of friends and split families apart...
Hydrocephalus : Some of us don’t realise how lucky we really are…
How many brain surgeries have you had due to Hydrocephalus? Some have had a few (2..maybe even 1) others, too many to mention. Personally, I would never dream of telling the next person that they’re lying when they say they’ve had in excess of 100 brain operations. As unbelievable...
Hydrocephalus Awareness is everyone’s responsibility
Someone you love or, even you yourself, has Hydrocephalus. Or, you may have heard of the girl down the street’s cousin who has it. It really doesn’t matter. The effects of this condition, as well as the Awareness and Advocacy thereof, lies with all of us. We do it...
Hydrocephalus: Help me to help you…
This post is for all those living with and, supporting someone, diagnosed with Hydrocephalus. First off, I would like to acknowledge: The fact that you’re in this alongside your Hydro warrior is admirable. Not everyone is made to withstand the challenges life throws our way especially an Invisible illness...
Hydrocephalus: ICP Monitoring results leave me feeling “conflicted”
I’ve waited more than two weeks to hear about my ICP Monitoring results and eventually assumed that “No news, is good news”. And, as it turns out it is indeed the case. I should be relieved and happy, to say the least. But…I have mixed emotions… I requested a...
Hydrocephalus: When you hear but don’t listen…
2 weeks ago, I had ICP Monitoring done (only my 5th Hydrocephalus-related surgery since being diagnosed just over 11 years ago). There were 2 things of note, amongst others, I took away from that experience: A nurse who looked at me surprisedly when I told her I have Hydrocephalus...
Hydrocephalus: What’s the reason why doctors “refuse” to help patients?
I remember a time when things were so simple, medically speaking. You felt unwell, went to the doctor and they actually helped you. Illnesses like Cancer, which everyone knows has a slim chance of survival, depending on the stage it’s at (but it’s possible), were/are accepted for the fatal...