It’s not always the same fight but regardless, I’m tired. To quote a fellow Hydro sister: “I know I am here for God’s purpose and He knows my days here yet, I am tired of having to force my physical body to do what my spirit wants to do.”...
Hydrocephalus
Brain surgery #6 left it’s mark on me…
It’s been a while since I’ve been able to string two sentences together, read on to find out why… My last surgery (at the beginning of May) and recovery have been unlike anything I’ve experienced before. My expectations weren’t high however, truth be told, I had a feeling something...
Brain injury of a different kind…
Between my post-op consult on Monday and listening to my Dad talk about his Last Will and Testament (following his COVID-19 diagnosis and recovery), I’ve been flung into the throws of a cry fest. My brain feels stuck…figuratively and literally! Warning: Vent ahead – Apologies in advance if this...
I’ve been feeling like I can do this, get to full recovery in a month, but…
It’s been harder than I anticipated. Maybe I rushed it. Maybe I didn’t rest enough. Or, maybe this time, brain surgery has taken its toll on me. I’ve been feeling like I need to be stronger than I am, in all areas of my life: physically, mentally and spiritually....
Use the teachable moments when you find it.
Mahatma Gandhi: “Be the change you wish to see in the world.” Regardless of whether you’re advocating for yourself or someone you know/in your life who has Hydrocephalus, there’s a teachable moment, no matter how big or small. While I was in hospital a few weeks ago after my repeat...
Divine intervention…
My hydro sister Cindy, phoned a day before my surgery and asked if she could say the Hebrew prayer for healing, for me. I happily accepted. Then she asked me to do something before the operation starts: “Ask the surgeon to take a moment of silence“. It reminded me...
Gert Tollesson, “saved my life and…my sanity!”
Gert Tollesson, aka Dr “O”, is the 15th specialist I’ve consulted with regarding my Hydrocephalus. Most of you, who follow my blog, will know the uphill battle I’ve had to climb to finally get to him! And, thank God I have!!! Words I would use to describe him: Kind,...
Pre-op consult and what you may want to consider…
A few days ago, I was faced with a heavy burden of having to fork out just shy of AU$5000 up front, which I normally keep under the mattress for a rainy day, like everyone else (sarcasm intended). It required an added level of perseverance and resourcefulness. Let’s just...
Money Or Your Life..?
It’s not an easy decision to make. It might seem obvious but reality dictates otherwise. And, unfairly so at times… I’m at a crossroad, one I’ve faced before, so many times. I finally found a surgeon who thinks outside the box and agrees my ETV is partially blocked. That...
Doctors shouldn’t be the reason why patients suffer…or die!
I’ve never been a person blessed with patience. If I had to be honest, I’m probably the least patient person I know! There’s so much waiting you have to do in-between doctors appointments, for test results and even the follow-up consult after the tests are done. In my last...