A few times now, I’ve had vision disturbances. Today was much like some of the other times. After initially freaking out, I reminded myself that it may just be a migraine starting. The Ophthalmologist I consulted with last year, helped me recognise the signs. But there’s no real migraine...
Hydrocephalus
Hydrocephalus: Brain injury is hard to deal with, comprehend and explain to others.
Do you ever experience a sense of confusion, mixed with sadness, while talking about things you just can’t remember? I’m specifically talking about moments shared with family…or even close friends. Being close to family, after nearly 7 years, there are bound to be trips down memory lane. I’ve become...
Hydrocephalus : Let’s talk Incontinence…
For anyone with Hydrocephalus, have you ever experienced incontinence as a by-product of your symptoms? Personally, I haven’t so can’t speak from experience. However, I have read somewhere that when you have a fair amount of pressure build-up, you tend to urinate often. Just how true this is, I...
Hydrocephalus: Are we our own worst enemies?
How much do you stop yourself from partaking in a discussion or giving your opinion on something? In a work situation for example – Do you ever feel yourself withdrawing because you feel less confident? Because you feel that your opinion isn’t valid or maybe you struggle to make...
Hydrocephalus : What I wish you knew…
Just because I’ve had brain surgery does NOT mean I’m cured. There is NO cure – that’s the reality of the condition. If I have to face it then…it shouldn’t be too hard for you. And, just because I’ve accepted my reality, doesn’t mean I’m being negative. If anything,...
Hydrocephalus: The tides we face…
Anyone who knows me, knows how much I love the ocean. A beach house, right next to or on the sand will be my wish come true. With that said, I don’t for one moment take for granted the powerful beauty it possesses. However, as much as I love...
Hydrocephalus : How does a mother “take it easy”?
I’m a mother of 3, living with Hydrocephalus for the last 12 years, since diagnosis. For the most part, I’ve had a “good run” with the effects of the condition (well, as good as it gets, I suppose). Funny thing is, life didn’t exactly give way when it decided...
Hydrocephalus: What’s your timeline look like?
Why hasn’t it crossed my mind before? Only after my visit to the Neurosurgeon on Monday, did I think to build a timeline of “episodes”. Looking through all my blogs, I found a pattern and almost feel like I’ve been sounding like a broken record over the years. (Apologies...
Hydrocephalus: Never give up on yourself…
If there’s one thing I’ve come to learn the hard way in life, it’s to listen to your gut. No matter how many times life teaches me this lesson, I still fall prey, to learning the hard way. You know, that little voice that you hear but can’t quite...
Hydrocephalus : More than just a dream…
Some time ago, I asked the question “Will there ever be a cure?” The general consensus was “Highly unlikely…”, not something anyone wants to hear (I for one, don’t). But, being a realist, I could see why this response had a common trend. In short, there are too many...