When I stepped into that ring again yesterday, I was “prepared” for the outcome I got…or was I? Funny thing about it, with the softest blow, I feel like I’ve been beaten to a pulp. That’s how little it took. For me to know the possible outcome, thinking I...
Hydrocephalus
Hydrocephalus: Waiting for an upcoming appointment…
Read this if you’d like to gain a better understanding of the mindset of someone with Hydrocephalus, waiting for an upcoming appointment. (Generally speaking, of course, as we all approach situations differently). I posted yesterday that I’m feeling “anxious” about my upcoming consult tomorrow. Truth be told, there’s probably...
Hydrocephalus: What does perspective look like to you?
Have you ever found yourself in a situation where you make a big deal of things and, after some time has passed, realise that it wasn’t as bad as you thought? I’ve certainly had my fair share of these moments and still do! Life hands us all lemons along...
Hydrocephalus: Loneliness, a feeling which consumes you when you have an invisible condition. But, have a look at this!
The very word “invisible”, speaks volumes if you care to notice it. To look at a person with Hydrocephalus, you wouldn’t know they had it, unless they’ve told you, or the signs are unavoidably visible. Also, many of us, live our lives feeling very isolated and most of the...
Hydrocephalus: How seriously do you treat your “triggers”?
Some “triggers” aren’t necessarily recognised as anything serious by the medical professionals we deal with. If this is the case, are we meant to ignore them too? Take for instance weather changes such as barometric pressure. Even as people with Hydrocephalus, it doesn’t affect all of us in the...
Hydrocephalus : Patience while you wait…
It feels like waiting is one of the things you do a lot of with a condition like Hydrocephalus. Being a person with little to zero patience (I do try though), it can become quite “painful” at times. In saying that, the comparison cannot be drawn between just your...
Hydrocephalus: Sharing the joys of upcoming brain surgery and a lightbulb moment.
A while back, I wrote a post titled, “When the thought of brain surgery “excites” you“. It would probably seem like a strange thing to write about but the preconceived ideas of a title like this, at first sight, couldn’t be further from the main reason behind it. Walter...
Hydrocephalus: What does an angry brain look like..?
Being bounced around the system, regardless of where in the world it is, is no fun at all. I sometimes think that people assume if you look fine, you must be fine. Having Hydrocephalus has certainly made me feel this way, on one too many occasions, regardless of who the other...
Hydrocephalus: Figuring out the next move…
In my last post, I mentioned that I had something to be grateful for and realised since then, there’s actually quite a few things, given my current situation. Firstly, I’m still breathing. That in itself is reason enough to be grateful. My job has kept my mind occupied and...
Hydrocephalus: Same shit, different country…
There seems to be a universal law when it comes to the way we are treated as Hydrocephalus patients. (Or, I’m just being overly sensitive – you be the judge of that). I know for a fact that, what I’ve experienced below and so many times before, is not...