I’m a mother of 3, living with Hydrocephalus for the last 12 years, since diagnosis. For the most part, I’ve had a “good run” with the effects of the condition (well, as good as it gets, I suppose). Funny thing is, life didn’t exactly give way when it decided...
Hydrocephalus
Hydrocephalus: What’s your timeline look like?
Why hasn’t it crossed my mind before? Only after my visit to the Neurosurgeon on Monday, did I think to build a timeline of “episodes”. Looking through all my blogs, I found a pattern and almost feel like I’ve been sounding like a broken record over the years. (Apologies...
Hydrocephalus: Never give up on yourself…
If there’s one thing I’ve come to learn the hard way in life, it’s to listen to your gut. No matter how many times life teaches me this lesson, I still fall prey, to learning the hard way. You know, that little voice that you hear but can’t quite...
Hydrocephalus : More than just a dream…
Some time ago, I asked the question “Will there ever be a cure?” The general consensus was “Highly unlikely…”, not something anyone wants to hear (I for one, don’t). But, being a realist, I could see why this response had a common trend. In short, there are too many...
Hydrocephalus: How much do you “lie” to appease someone else’s response to the reality you face, of living with ill health?
“Hopefully by the end of this month all the medical drama will come to an end…” I uttered these words to a friend today and heard a little voice mocking me, saying: “Are you sure about that..?“. Truth is, saying these words is like making a promise, you know...
Hydrocephalus : When diagnostic tests show everything as “normal”…
“Normal” . What the hell does that mean anyway..? Do you ever just get a tad cheesed off by results which show “normal”? When you feel all the discomfort which spurs you on to seek medical help, yet test results show “nothing is wrong“. I think it’s a very...
Hydrocephalus: Rest In Peace Josh and Rise In Glory
I’ve been known to get quite “emotional” about things, it’s in my DNA, something I accept, the older I get. It’s what defines me… Aside from this, I carry my heart on my sleeve and feel the pain or joy of others. I think this must be why it’s...
Hydrocephalus: Would you tell your child they have it..?
Preparing yourself about all that Hydrocephalus encompasses, is probably the wisest thing you could do. I almost feel compelled to write this post today. To give you some perspective. I recently, had a chat with someone who told me about a young child (about 12 years old) whose parents...
Hydrocephalus : Ageing just one more “obstacle”…
Obstacles are usually things you can overcome or navigate around…So, maybe saying “Ageing” is an obstacle, isn’t entirely right. Meh! My 8-year-old daughter, constantly tells me “Mum you’re getting old”, as if to console me. This is usually in response to my reaction when I either forget stuff or...
Hydrocephalus : Recovery in progress – Investigations ongoing…
Don’t you sometimes wish you could just hang a “Recovery mode in progress…investigations ongoing” (or similar), sign around or near you? Since starting my website, I’ve tried to do a blog post at least once a week, sometimes more because I’m passionate about creating awareness on this condition. But,...