Preparing yourself about all that Hydrocephalus encompasses, is probably the wisest thing you could do. I almost feel compelled to write this post today. To give you some perspective. I recently, had a chat with someone who told me about a young child (about 12 years old) whose parents...
Hydrocephalus
Hydrocephalus : Ageing just one more “obstacle”…
Obstacles are usually things you can overcome or navigate around…So, maybe saying “Ageing” is an obstacle, isn’t entirely right. Meh! My 8-year-old daughter, constantly tells me “Mum you’re getting old”, as if to console me. This is usually in response to my reaction when I either forget stuff or...
Hydrocephalus : Recovery in progress – Investigations ongoing…
Don’t you sometimes wish you could just hang a “Recovery mode in progress…investigations ongoing” (or similar), sign around or near you? Since starting my website, I’ve tried to do a blog post at least once a week, sometimes more because I’m passionate about creating awareness on this condition. But,...
Hydrocephalus: Process of elimination is backward, with treatment failure (Shunt/ETV), being first…
Feeling ill could be caused by anything, I know that… I’d be lying if I said, at the first sign of a headache, I don’t get my back up against a wall. Even being overcome with nausea and loss of appetite has me wondering if it’s the start of “something“. ...
Ventriculo-ureteral shunt – Have you ever heard of this before..?
When I said before that there’s never a dull moment with this condition, I should have added that “There’s always something new to learn about, that you haven’t heard of before”. My family and I have recently moved to Brisbane, Australia. A new job, family and the hope of...
Hydrocephalus: A ticking time bomb…
You don’t know when, you don’t know how…but, you know it will. Each day goes by, turning into a week, a month…a year. Moments of happiness, moments of sadness and…moments in between. Regardless thereof…the aching pain inside your head reminds you of your own reality. People come and people...
Hydrocephalus : The effects run deeper than just physical pain…
It’s been 9 years since I last had brain surgery, excluding the ICP monitoring I had a few months back. I feel fortunate, for lack of a better word, compared to others who endure more harrowing times. The moments in-between where I questioned and wondered if what I was...
Hydrocephalus: When your family relies on you for…(just about) everything
I have no doubt there are many of us, who are relied upon by our families, to be the one who holds it all together. I especially know this is highly likely if you weren’t born with Hydrocephalus (though not limited to) but, diagnosed later in life, like me. ...
Hydrocephalus : Are you ever hesitant to start over?
There are so many situations we are presented with in life, where we need to start over. Some situations we shy away from and tell ourselves “Its not worth it” and, I guess (given the circumstances at the time), we’d be right. Some situations, however, require us to start...
Hydrocephalus: Do you have a Hydro buddy?
I often think back on what I’ve been through and how far I’ve come since I was first diagnosed a few years ago. What life was like before, escapes me a bit though, simply because there are parts I just don’t remember. I do, however, remember how it felt...