There some things in life that no one can prepare you for…
For example:
Take a diagnosis like Hydrocephalus, an incurable condition, at a pivotal time in your life. An interruption to your norm with brain surgery being the ONLY treatment option, for the rest of your days. It could be 1, it could be in excess of 100 (that’s no exaggeration).
💙No one can safely predict if, or when, you will ever need surgery (again).
💚No one can safely say you won’t need to factor it into your life or remain vigilant and aware.
💙No one can tell you that what you’re feeling is not real.
💚No one can safely prepare you for the risks or residual effects brain surgery, and this condition, will leave you with. (Irreversible brain injury).
💙The person you see staring back at you in the mirror, can look foreign through your eyes, yet exactly the same to others from the outside.
💚No one can guarantee that you won’t lose relationships with people closest to you. (It takes a toll on everyone).
💙Regardless of your work ethic or history; No employer can guarantee they won’t let you go at a most vulnerable point in your life. Loyalty is reserved for dogs alone.
‼️FACT: After sustaining a brain injury, most people will end up losing their job. The likelihood of this is HIGH❣️
💓HOWEVER, no one can tell you that you shouldn’t, or can’t, go beyond your own limitations, if you’re able to.🦋
🎯As long as you don’t give up on yourself, keep pushing forward, making progress (no matter how slow), you will get through…With an abundance of self-care, self-love and kindness towards yourself. You will be:
🌻Stronger than before❣️
🎯REMEMBER; You can’t control others, or what happens to you, your power lies in your response. What you choose to do from that point forward, is reserved for ONLY YOU💕
Philippa Taylor
March 2, 2025 at 10:31 amMy last revision was 20 years ago, but I know that that could change at any time. I had 5 revisions and a brain biopsy (2 revisions in less than 10 days) so I know it’s not guaranteed that I won’t have another. My main disabling condition in the last 15-20 years has been ME/CFS, which may have been in part due to viruses, or the hydrocephalus.
What I know is that, whatever happens, whoever abandons me because they can’t deal with it, I have to keep fighting. I’ve kept going through it and I won’t give up.
Skyewaters
March 11, 2025 at 10:32 amGiving up is not an option. Knowing that we don’t have any guarantees makes a difference. You have the right attitude to see you through by the sounds of it. Funny how this condition makes us tougher with each passing moment.
Duncan Griz Salloway
March 1, 2025 at 11:50 pmHey Skye; my fate was dealt to me by my NSG it was him who told me I should retire at 48. Looking back 65 now legal age to retire in Canada. There is no way with the 10 revisions I would have been able to work. Nor could I now, I can’t even walk anymore.🥹
Skyewaters
March 2, 2025 at 1:46 amHi Duncan. It’s a fate we certainly could do without given what we already have to deal with. Thank you for sharing. Wishing you all the best💙