You’re probably wondering if I’ve completely lost my mind or how I can say that, well that’s because it’s only one of the emotions I feel right now – along with fear and anxiety. It may not be an ETV or Shunt surgery but it’s brain surgery nonetheless. The procedure I’ll be having is called…
Having Hydrocephalus has certainly taught me some valuable life lessons. Some…more obvious than others. The last few weeks have felt like an unnervingly familiar road which I walked a few years back. History repeating itself, with doctors who outright refuse to help me BUT there’s 1 (FINALLY! – it only took 5 years) who will…
Just an update, since my last post, with me ending up at the ED, despite my internal protests and reservations that nothing would be done…(I always give a situation the benefit of the doubt). But alas… There were a few things that stood out for me this weekend: Calling to find out if someone from Neurology…
Can you honestly say that the circumstances surrounding the death of Travis Shumate have not affected you? Or at the very least made you think..? Whether you have Hydro yourself or someone you love has it, really doesn’t matter. I’m sure many of us have hit a level of discomfort and have even wondered “Can…
Most people say that your attitude towards something will determine how you deal with it (or any challenges presented). For the most part, I would tend to agree with this simply because I learnt a long time ago that if I let the negativity in, it might just consume me. Don’t misunderstand…I’m a realist by…
“I’m sorry…” seems to be the first words that come to mind. Sorry for so many things because somehow, I just feel this is wrong and unfair. Sorry because you were a little girl that I knew once upon a time, a girl whom I envied and loved because you were always kind and caring…
When I was diagnosed with Hydrocephalus, my husband and I had a pre-op consult with the surgeon, who discussed my upcoming shunt surgery. We talked about what to expect before, during and after the operation. More importantly, we told him that we were planning on having another baby and questioned whether this would be a…
There’s something I’ve always read and seen but never fully paid attention to. When we die, we leave this world just as we came into it, with nothing. All our possessions and wealth, no matter how big or small will be left behind. As a human race, we seem to be constantly wanting more wealth,…
2 December marks my 7 year post op hurdle. I’ve done it…defied the odds! (She says optimistically). I was told after my operation, that the ETV could close and it normally happens within 5 years. Whether I’ve come to the end of the track or am charging ahead toward the next hurdle…who knows? Every year…
The cost of medical care as mentioned in a previous post is just ridiculous. I’m not going to talk this point to death but I do feel that there is room for discussion. At my last consult, after being told off, I sort of lost track of the conversation as I licked my internal wound, while…
