There’s something which tugs my heart strings even more than the fact that so many people with Hydrocephalus endure endless brain surgeries. Children, babies to be more specific, the most vulnerable of all who go through this. As a mother, I’d be lying if I said it doesn’t stir something inside of me when I see a…
Is it really worth having a conversation with someone who doesn’t understand what Hydrocephalus is all about? (I’m not talking about Awareness or education because that will always be worth it). Someone who doesn’t get that this is a serious condition, requiring immediate action, in some cases? Someone who doesn’t get your fears, anxieties and…
A few years ago, my family and I made the mistake of moving into a two storey house with another family. (I don’t recommend this to anyone unless you have what it takes. It’s the kind of situation that can make enemies out of friends and split families apart – like borrowing money). The house…
Having Hydrocephalus has certainly taught me some valuable life lessons. Some…more obvious than others. The last few weeks have felt like an unnervingly familiar road which I walked a few years back. History repeating itself, with doctors who outright refuse to help me BUT there’s 1 (FINALLY! – it only took 5 years) who will…
Wherever I was in my life when you appeared (like a phantom) on the scene, doesn’t even matter anymore. Whatever was going on, whatever I regarded as important at the time…overtaken by the enormity of you. You threw me for a loop and left me spinning aimlessly, wandering on the playing fields of this thing…
I had a chat with an acquaintance of mine not too long ago. We have one thing in common, but for different reasons, we’ve both had brain surgery. Therefore, it would set us apart from the rest of the “normal” people around us. We both don’t handle noise very well and therefore dislike an open…
With every new year comes a wave of resolutions. We set out goals which, we hope to achieve or attain. Some we succeed at, some fail as soon as they begin and others…well, let’s just say we manage to take detours that sometimes leave us pondering. This new year, I’ve decided that I won’t expect…
What no person with Hydrocephalus wants or needs to hear: “Most people I see are in a coma and…you look fine to me” – Neurosurgeon So does that mean I need to be in a coma for you to take me seriously? ********** “I get bad headaches too” – Family, colleagues and acquaintances I don’t…
I have only ONE out of the countless types of incurable conditions which exist at this point in time. ONE condition amidst ALL other illnesses and diseases that plague the human race. Therefore, I can only speak from the confines of that which afflicts me. I often hear the saying that “during times of difficulty,…
Before the start of this year’s awareness month, I didn’t have a plan of what I would do. However, a few days before, I felt a growing need inside of me to spread awareness simply because I recognise the need to shine a light on this invisible illness. It wasn’t about making this condition bigger,…
