Does the world turn its back on you, once you’re diagnosed with an incurable condition..?

I know not everyone will agree with this post, and I’m OK with that. But, I’d like to believe that some of what I have to say, will resonate with people who have actually experienced it. For those who have, I hope this gives you a voice… My humble...

Onwards and upwards!

If life has taught me anything, and more specifically Hydrocephalus, it’s that you simply cannot give up. You can get tired of the fight, yes (repeatedly!). You can take a break, for however long you choose. Ok, realistically…for as long as Hydrocephalus gives you a pass…but I think you...

Human pincushion

I hate needles just as much as the next person. Always have, always will. A few nights ago I had an abdominal MRI to figure out what’s causing the pain I’ve been having for the past couple of years. For now, we suspect either scar tissue from my VP...