I know not everyone will agree with this post, and I’m OK with that. But, I’d like to believe that some of what I have to say, will resonate with people who have actually experienced it. For those who have, I hope this gives you a voice… My humble...
Articles with the Tag Incurable condition
Hydrocephalus sucks! Validating your feelings.
So often I’ve felt a need just for some understanding when it comes to this condition. I’ve reached a point where I know and commit to memory that this condition is invisible and, as such, others around me will unfortunately treat it the same way. They’re simply oblivious to...
Brain surgery cost is ridiculous. This is why.
This post is more about the total cost involved with care, treatment, surgery and overall recovery. I would go so far as to say; aside from the financial cost, there’s an impact on ones mental, physical and emotional state as well. And, under the right circumstances, can have the...
I get so tired of the fight, all it’s detours and juncture points.
It’s not always the same fight but regardless, I’m tired. To quote a fellow Hydro sister: “I know I am here for God’s purpose and He knows my days here yet, I am tired of having to force my physical body to do what my spirit wants to do.”...
Gert Tollesson, “saved my life and…my sanity!”
Gert Tollesson, aka Dr “O”, is the 15th specialist I’ve consulted with regarding my Hydrocephalus. Most of you, who follow my blog, will know the uphill battle I’ve had to climb to finally get to him! And, thank God I have!!! Words I would use to describe him: Kind,...
Onwards and upwards!
If life has taught me anything, and more specifically Hydrocephalus, it’s that you simply cannot give up. You can get tired of the fight, yes (repeatedly!). You can take a break, for however long you choose. Ok, realistically…for as long as Hydrocephalus gives you a pass…but I think you...
Life without Hydrocephalus
Many of us who have this condition have been born with it and therefore don’t have any idea what it’s like to live without it. Also, you can’t miss something you never knew. I posted this on Valentine’s Day and have had a few people ask: “What’s it like...
Human pincushion
I hate needles just as much as the next person. Always have, always will. A few nights ago I had an abdominal MRI to figure out what’s causing the pain I’ve been having for the past couple of years. For now, we suspect either scar tissue from my VP...
Forget you have it…
Realistically, on a scale of 1 to 10, how easy would it be to forget you have an incurable condition? More specifically, Hydrocephalus. I’ll admit, there are days where my memory issues come in handy in this regard. To carry on with life, as if nothing is wrong, is...
There’s bound to be casualties…
A diagnosis of an incurable condition will undoubtedly leave some casualties along the way. In this instance, I don’t mean anyone dying but rather loss of relationships. Some of us are born with Hydrocephalus, some of us are diagnosed somewhere in-between and others, towards our last stretch of the...