A diagnosis of an incurable condition will undoubtedly leave some casualties along the way. In this instance, I don’t mean anyone dying but rather loss of relationships. Some of us are born with Hydrocephalus, some of us are diagnosed somewhere in-between and others, towards our last stretch of the...
Articles with the Tag Incurable condition
Looking after your mental health
Mental health challenges, are nothing to scoff at. I do believe that most people experience something (or even a few) that adversely them, at one point or another. I’m not ashamed to say I have my fair share of ups and downs. It’s never easy to deal with and,...
Hydrocephalus: When You’re At A Crossroad In Terms Of YOUR Care…
I sometimes think this is such an unfair condition to have. One could argue and ask, compared to what? This would be a “relatively” fair enough question. But, I do feel, (as someone diagnosed with it, someone who knows the full extent of the pain and consequences of the...
Hydrocephalus: The 3rd party in your marriage
For better or worse…in sickness and in health…till death do us part… When Hydrocephalus made itself known and stepped into my life, nothing could have prepared me for the road that lay ahead. Age 29, married, 2 kids and in the prime of my career…I would never have thought...
Hydrocephalus: Are doctors biased?
A hydro warrior asked me this week: “If you’ve ever gone for a second opinion, have you ever felt the second opinion judging you because of previous treatment you’ve received?” I had to smile at this question because not only have I sought a second opinion but I’ve lost...
Hydrocephalus: Just another detour…
There are moments in your life where you have no control over what happens to you, so many, too many to list. We all have them, we all go through “stuff” that either make us or break us. Situations which require us to go on a journey, into the...
Hydrocephalus: Resuscitation through conversation…
Do you ever have conversations, sit back later and realise there was a message in it for you? It’s no secret, my previous consultation left me a bit down in the dumps (Ok, very much so!). I slipped down the same slippery slope, like so many other times before,...
Hydrocephalus: Do you ever downplay your condition? If you do, do you think it affects how others react or respond to you?
Some would say Hydrocephalus is not a big deal. I know quite a few people who have actually said this to me but, I also know quite a few who would claw your eyes out for uttering those words. (Ok, maybe not that extreme but they’d definitely take offence). ...
Hydrocephalus : How does a mother “take it easy”?
I’m a mother of 3, living with Hydrocephalus for the last 12 years, since diagnosis. For the most part, I’ve had a “good run” with the effects of the condition (well, as good as it gets, I suppose). Funny thing is, life didn’t exactly give way when it decided...