Just an update, since my last post, with me ending up at the ED, despite my internal protests and reservations that nothing would be done…(I always give a situation the benefit of the doubt). But alas… There were a few things that stood out for me this weekend: Calling to...
Articles with the Tag Feeling helpless
When your body requires you to rest…
I’m not the kind of person who likes being told what to do. In fact, the more independent and self-sufficient I am, the better. My family know, despite their protests or advice when it comes to the way something needs to be done, I’ll still do what and how...
Hydrocephalus : What’s your weather triggers?
“Whether the weather be hot, whether the weather be cold, whether the weather, whatever the weather, whether you like it or not…” Anonymous A few years back, my family and I visited our relatives in Brisbane, Australia. It was extremely hot and the first week I suffered to the point where...
Hydrocephalus: Clutter bug
Does clutter bug you? I bet you’re wondering what clutter could possibly have to do with Hydrocephalus. Bear with me… I personally, looking at my surroundings, am a self-confessed hoarder praying desperately for a release to a calm Zen-like state. (Or maybe I just have too much on my...
Hydrocephalus : An invisible illness that’s painfully visible to me
What no person with Hydrocephalus wants or needs to hear: “Most people I see are in a coma and…you look fine to me” – Neurosurgeon So does that mean I need to be in a coma for you to take me seriously? ********** “I get bad headaches too” –...
Hydrocephalus the elitist club…NOT!
Over the years of dealing with doctors, some have made me feel the need to (overly) explain why and how I developed Hydrocephalus. Almost as if to justify it… Granted it’s normal to be asked this at a first consult with a new doctor to give them the context...
Open letter to Hydrocephalus
Where did you come from..? Why did you happen to my body..? What led to me being the “lucky” one to have to grin and bear you..? Why did you choose me..? I guess I’ll never know the answer to these questions… You caused an obstruction in the path...
What’s a girl with Hydrocephalus to do..?
Fighting against doctors while you believe that something is wrong with your shunt or ETV, feels like a daunting thing to do. Helpless is the number one feeling that comes to mind. I remember when my shunt was failing, I fought about as hard as I am now to...
Why is depression a diagnosis that Neurologists like to jump to with Hydrocephalus patients?
Since my last post, I can’t really admit to feeling much better. I sincerely wish I could just lie and shake this shit off me. Click my fingers and voila! But alas… My MRI results have come back with normal ventricles and a patent stoma – Meaning, my ETV...
Hydrocephalus 10…Celeste 0
I’m not a very sporty person (evident from my physique)…I kid you not. However, in any competition I find myself up against, I will admit to being a bit of a sore loser. I might not be an extremist in this regard but I do feel the pangs of...