I wrote this a few weeks ago, it was meant to be my way of motivating anyone who needed it. But, I never actually got around to finishing it. Now, lying in a hospital bed (yet again), I find it more suited to my own situation. Current state: I called my neurosurgeon’s room yesterday and…
In one of my previous posts: “How I cope is much the same as being like a duck”, I talk about the best advice I was given by my ex-manager Ian, after my diagnosis and first brain surgery. I struggled at work, to get back to a version of my former self (who seemed nonexistent)….
She stood her ground and so did he. They are warriors of a different kind. In the days of war (I can only imagine), facing an unknown opponent, you have no idea what their strengths or weaknesses are. Nor, do you know, what tactical moves they will use to defeat you. You either fear them…
This condition has taught me to be, not only resilient, but also resourceful. The things I’ve had to do and endure, over these last few years, cause me to feel both anger and admiration (amongst other things). As a result, it forces you to figure things out for yourself! I feel anger because I’ve had…
Trigger Warning: Depression, End of life/Suicide, Trauma. If you feel in the least affected, please do not read this. And, if you need to, seek help. I’ve gone through bouts of depression on and off throughout my life. I’m no stranger to this dark demon. Spiralling down the rabbit hole I didn’t really give it…
Shunts, a bone of contention for many people diagnosed with Hydrocephalus. I would almost go so far as to say there’s a divide on the feeling towards this “lifesaving” device. Not everyone feels the love when it comes to them, but we all know that without them, things would be “challenging”, to say the least….
It’s been quite a challenge getting back into writing. These last few months have certainly taken a toll on me but, progress is evident. I don’t know if it’s my last brain surgery in May, which left me paranoid but, I always find myself trying to solve the “world’s” problems before I have surgery. In…
It’s been harder than I anticipated. Maybe I rushed it. Maybe I didn’t rest enough. Or, maybe this time, brain surgery has taken its toll on me. I’ve been feeling like I need to be stronger than I am, in all areas of my life: physically, mentally and spiritually. Thinking that if I’m not, somehow,…
If life has taught me anything, and more specifically Hydrocephalus, it’s that you simply cannot give up. You can get tired of the fight, yes (repeatedly!). You can take a break, for however long you choose. Ok, realistically…for as long as Hydrocephalus gives you a pass…but I think you get the idea. You can even…
Many of us who have this condition have been born with it and therefore don’t have any idea what it’s like to live without it. Also, you can’t miss something you never knew. I posted this on Valentine’s Day and have had a few people ask: “What’s it like to live life without Hydrocephalus?” The…
