This condition has taught me to be, not only resilient, but also resourceful. The things I’ve had to do and endure, over these last few years, cause me to feel both anger and admiration (amongst other things). As a result, it forces you to figure things out for yourself!...
Articles with the Tag Facing the Unknown
Does the world turn its back on you, once you’re diagnosed with an incurable condition..?
I know not everyone will agree with this post, and I’m OK with that. But, I’d like to believe that some of what I have to say, will resonate with people who have actually experienced it. For those who have, I hope this gives you a voice… My humble...
Hydrocephalus sucks! Validating your feelings.
So often I’ve felt a need just for some understanding when it comes to this condition. I’ve reached a point where I know and commit to memory that this condition is invisible and, as such, others around me will unfortunately treat it the same way. They’re simply oblivious to...
Brain surgery cost is ridiculous. This is why.
This post is more about the total cost involved with care, treatment, surgery and overall recovery. I would go so far as to say; aside from the financial cost, there’s an impact on ones mental, physical and emotional state as well. And, under the right circumstances, can have the...
When there’s a “kink” in the armour….
Shunts, a bone of contention for many people diagnosed with Hydrocephalus. I would almost go so far as to say there’s a divide on the feeling towards this “lifesaving” device. Not everyone feels the love when it comes to them, but we all know that without them, things would...
What are your little “quirks” before surgery?
It’s been quite a challenge getting back into writing. These last few months have certainly taken a toll on me but, progress is evident. I don’t know if it’s my last brain surgery in May, which left me paranoid but, I always find myself trying to solve the “world’s”...
Surgery again…but, thankfully, not brain surgery..!
It’s been a while since I’ve been able to focus enough and write. Recovery from brain surgery #6 is still ongoing but, every day is getting better…The Vitamin B and Ginkgo Biloba that I’ve been taking, is certainly showing the benefits in terms of my cognitive function. Even though...
Cancer is not something I want to consider in my life but sometimes, there is no choice…
Surgery..again! It’s just over 3 months since my repeat ETV (brain surgery #6). I stared at a similar photo to the one at the top of this post last week, in my Endocrine surgeon’s waiting room. Having just had a consult with him and agreeing to go ahead with...
Gert Tollesson, “saved my life and…my sanity!”
Gert Tollesson, aka Dr “O”, is the 15th specialist I’ve consulted with regarding my Hydrocephalus. Most of you, who follow my blog, will know the uphill battle I’ve had to climb to finally get to him! And, thank God I have!!! Words I would use to describe him: Kind,...
Money Or Your Life..?
It’s not an easy decision to make. It might seem obvious but reality dictates otherwise. And, unfairly so at times… I’m at a crossroad, one I’ve faced before, so many times. I finally found a surgeon who thinks outside the box and agrees my ETV is partially blocked. That...