Does the world turn its back on you, once you’re diagnosed with an incurable condition..?

I know not everyone will agree with this post, and I’m OK with that. But, I’d like to believe that some of what I have to say, will resonate with people who have actually experienced it. For those who have, I hope this gives you a voice… My humble...

Hydrocephalus: Some conversations aren’t worth having…

Is it really worth having a conversation with someone who doesn’t understand what Hydrocephalus is all about?  (I’m  not talking about Awareness or education because that will always be worth it).  Someone who doesn’t get that this is a serious condition, requiring immediate action, in some cases?  Someone who...

Hydrocephalus : Some of us don’t realise how lucky we really are…

How many brain surgeries have you had due to Hydrocephalus?  Some have had a few (2..maybe even 1) others, too many to mention.  Personally, I would never dream of telling the next person that they’re lying when they say they’ve had in excess of 100 brain operations.  As unbelievable...