Is it really worth having a conversation with someone who doesn’t understand what Hydrocephalus is all about? (I’m not talking about Awareness or education because that will always be worth it). Someone who doesn’t get that this is a serious condition, requiring immediate action, in some cases? Someone who...
Articles with the Tag Empathy
Hydrocephalus : Some of us don’t realise how lucky we really are…
How many brain surgeries have you had due to Hydrocephalus? Some have had a few (2..maybe even 1) others, too many to mention. Personally, I would never dream of telling the next person that they’re lying when they say they’ve had in excess of 100 brain operations. As unbelievable...
Hydrocephalus: Help me to help you…
This post is for all those living with and, supporting someone, diagnosed with Hydrocephalus. First off, I would like to acknowledge: The fact that you’re in this alongside your Hydro warrior is admirable. Not everyone is made to withstand the challenges life throws our way especially an Invisible illness...
People with Hydrocephalus look no different to you…
We walk among you, have hopes, dreams and fears. We are employees, parents, children, students, adults, senior citizens and more. Anyone at any age can receive their diagnosis – we are not all born with it. But, those who are, experience their first brain surgery hours, even days, after...
Do you ever find yourself in this situation..?
It seriously pisses me off! Sorry for my language but I’m feeling so frustrated not only right now, but for all the other times before. And, all the times I know are still to come. I’ve explained on so many occasions that I’m not good with directions and having...
I’m a member of the Hydrocephalus family…Never Alone
Family. What defines it? Because of all the support groups for Hydrocephalus, I belong to and through my blog, I incorporated the phrase at the top of today’s post in my Hydro Logo. Nothing brings it home more just how big and affected this family is when one of...
Hydrocephalus : What’s your 2018 going to be like?
With every new year comes a wave of resolutions. We set out goals which, we hope to achieve or attain. Some we succeed at, some fail as soon as they begin and others…well, let’s just say we manage to take detours that sometimes leave us pondering. This new year,...
How do you tell your boss that you have Hydrocephalus : Present
My past experience has been somewhat different from where I am now. It almost feels like it could be worlds apart…in fact, that’s exactly where it’s at. Better..? Or worse..? Hmmm.. I left my home country, a few years after diagnosis, shunt surgery and eventual ETV, in search of...
How do you tell your boss, that you have Hydrocephalus? 3-part post
Past When I was first diagnosed, at age 29, I was a full-time employee. Therefore, my manager at the time was with me from the start of my Hydro journey. I remember clearly when I got the results from my CT scan and what happened after discussing the findings...
Gaining insight from colleagues
Work…the place we spend the majority of our precious time. Colleagues…the people we spend more time with than our own family. Just how important do you regard them to be? In my opinion, we need at least someone who knows that we have this condition at work. A person/s...