Gert Tollesson, aka Dr “O”, is the 15th specialist I’ve consulted with regarding my Hydrocephalus. Most of you, who follow my blog, will know the uphill battle I’ve had to climb to finally get to him! And, thank God I have!!! Words I would use to describe him: Kind, Caring, Humble, Compassionate, Empath, Knowledgeable, Experienced,…
My central vision blacked out on Christmas Eve, while working, sending me into a bit of a panic. People’s faces were reduced to half an image and text was darn near impossible to read! I smiled at the receptionist on my way out of the office, whilst freaking out inside. I decided to step away…
I often think back on what I’ve been through and how far I’ve come since I was first diagnosed a few years ago. What life was like before, escapes me a bit though, simply because there are parts I just don’t remember. I do, however, remember how it felt seeing the word Hydrocephalus as my…
There’s something which tugs my heart strings even more than the fact that so many people with Hydrocephalus endure endless brain surgeries. Children, babies to be more specific, the most vulnerable of all who go through this. As a mother, I’d be lying if I said it doesn’t stir something inside of me when I see a…
Is it really worth having a conversation with someone who doesn’t understand what Hydrocephalus is all about? (I’m not talking about Awareness or education because that will always be worth it). Someone who doesn’t get that this is a serious condition, requiring immediate action, in some cases? Someone who doesn’t get your fears, anxieties and…
How many brain surgeries have you had due to Hydrocephalus? Some have had a few (2..maybe even 1) others, too many to mention. Personally, I would never dream of telling the next person that they’re lying when they say they’ve had in excess of 100 brain operations. As unbelievable as it may sound, I can…
This post is for all those living with and, supporting someone, diagnosed with Hydrocephalus. First off, I would like to acknowledge: The fact that you’re in this alongside your Hydro warrior is admirable. Not everyone is made to withstand the challenges life throws our way especially an Invisible illness like this. There are no warning…
We walk among you, have hopes, dreams and fears. We are employees, parents, children, students, adults, senior citizens and more. Anyone at any age can receive their diagnosis – we are not all born with it. But, those who are, experience their first brain surgery hours, even days, after taking their first breath. Likewise, head…
It seriously pisses me off! Sorry for my language but I’m feeling so frustrated not only right now, but for all the other times before. And, all the times I know are still to come. I’ve explained on so many occasions that I’m not good with directions and having short-term memory issues, on top of…
Family. What defines it? Because of all the support groups for Hydrocephalus, I belong to and through my blog, I incorporated the phrase at the top of today’s post in my Hydro Logo. Nothing brings it home more just how big and affected this family is when one of our own succumbs to the condition. …
