I often think back on what I’ve been through and how far I’ve come since I was first diagnosed a few years ago. What life was like before, escapes me a bit though, simply because there are parts I just don’t remember. I do, however, remember how it felt seeing the word Hydrocephalus as my…
There’s something which tugs my heart strings even more than the fact that so many people with Hydrocephalus endure endless brain surgeries. Children, babies to be more specific, the most vulnerable of all who go through this. As a mother, I’d be lying if I said it doesn’t stir something inside of me when I see a…
I can be angry that life dealt me the Hydro card. I can curse everything under, around or above the sun…but, it won’t make a difference. 29 years old and living a reasonably sheltered life (as far as this condition goes), that’s the reality I faced before I read the words “Mild Hydrocephalus” on a…
When it comes to Hydrocephalus, I don’t underestimate anything, especially not what I’d do for myself. Not everyone will agree with the way you handle this condition, not everyone will understand your motivations or your disappointments. Truth be told, for some of us, this condition is less of a nightmare than others. Though we understand…
Is it really worth having a conversation with someone who doesn’t understand what Hydrocephalus is all about? (I’m not talking about Awareness or education because that will always be worth it). Someone who doesn’t get that this is a serious condition, requiring immediate action, in some cases? Someone who doesn’t get your fears, anxieties and…
Fear…a driver for most (negative) things in life. It’s certainly blocked me from doing a few things. In fact, had it not been for fear, I now know that nothing (physically) would have happened to me. But, I stopped myself before I could reach that point. When I started realising that my short-term memory was…
A few years ago, my family and I made the mistake of moving into a two storey house with another family. (I don’t recommend this to anyone unless you have what it takes. It’s the kind of situation that can make enemies out of friends and split families apart – like borrowing money). The house…
How many brain surgeries have you had due to Hydrocephalus? Some have had a few (2..maybe even 1) others, too many to mention. Personally, I would never dream of telling the next person that they’re lying when they say they’ve had in excess of 100 brain operations. As unbelievable as it may sound, I can…
Someone you love or, even you yourself, has Hydrocephalus. Or, you may have heard of the girl down the street’s cousin who has it. It really doesn’t matter. The effects of this condition, as well as the Awareness and Advocacy thereof, lies with all of us. We do it for ourselves, we do it for…
This post is for all those living with and, supporting someone, diagnosed with Hydrocephalus. First off, I would like to acknowledge: The fact that you’re in this alongside your Hydro warrior is admirable. Not everyone is made to withstand the challenges life throws our way especially an Invisible illness like this. There are no warning…
