I’ve been known to get quite “emotional” about things, it’s in my DNA, something I accept, the older I get. It’s what defines me… Aside from this, I carry my heart on my sleeve and feel the pain or joy of others. I think this must be why it’s so hard being Skyewaters sometimes. Hydro…
Preparing yourself about all that Hydrocephalus encompasses, is probably the wisest thing you could do. I almost feel compelled to write this post today. To give you some perspective. I recently, had a chat with someone who told me about a young child (about 12 years old) whose parents never told her she has a…
Obstacles are usually things you can overcome or navigate around…So, maybe saying “Ageing” is an obstacle, isn’t entirely right. Meh! My 8-year-old daughter, constantly tells me “Mum you’re getting old”, as if to console me. This is usually in response to my reaction when I either forget stuff or complain about my insane loss of…
Don’t you sometimes wish you could just hang a “Recovery mode in progress…investigations ongoing” (or similar), sign around or near you? Since starting my website, I’ve tried to do a blog post at least once a week, sometimes more because I’m passionate about creating awareness on this condition. But, I haven’t been feeling well for…
Feeling ill could be caused by anything, I know that… I’d be lying if I said, at the first sign of a headache, I don’t get my back up against a wall. Even being overcome with nausea and loss of appetite has me wondering if it’s the start of “something“. Prolonged sleeping episodes are also probably…
When I said before that there’s never a dull moment with this condition, I should have added that “There’s always something new to learn about, that you haven’t heard of before”. My family and I have recently moved to Brisbane, Australia. A new job, family and the hope of “better” healthcare are just a few…
You don’t know when, you don’t know how…but, you know it will. Each day goes by, turning into a week, a month…a year. Moments of happiness, moments of sadness and…moments in-between. Regardless thereof…the aching pain inside your head reminds you of your own reality. People come and people go, “each to their own”, as the…
It’s been 9 years since I last had brain surgery, excluding the ICP monitoring I had a few months back. I feel fortunate, for lack of a better word, compared to others who endure more harrowing times. The moments in-between where I questioned and wondered if what I was feeling was ETV failure or not,…
I have no doubt there are many of us, who are relied upon by our families, to be the one who holds it all together. I especially know this is highly likely if you weren’t born with Hydrocephalus (though not limited to) but, diagnosed later in life, like me. In my own family unit (myself,…
There are so many situations we are presented with in life, where we need to start over. Some situations we shy away from and tell ourselves “Its not worth it” and, I guess (given the circumstances at the time), we’d be right. Some situations, however, require us to start over regardless of what we feel,…
