Understanding what Hydrocephalus is can be a little confusing, overwhelming or just plain and simply do your head in. I remember when I first saw the word on a scan result I had done. I remember going “Huh? Hydro what?” Since that day, now just over 8 years ago,...
Hydrocephalus
We are not faking…
I read a post on Facebook the other day, in one of the groups I belong to, that just angered me more than anything else. It wasn’t even the fact that there seems to be a general belief that people with Hydrocephalus are faking their symptoms. It was reading...
Finding the Joy
I recently completed and self-published my book Hydrocephalus: Floating Faithfully. This is a book that I had to write not because I was forced to. On the contrary, it was driven by my realization of, what I believe to be, my life purpose…To effect change, no matter how big...
Hydrocephalus hangover…
Hydrocephalus had me on my knees last weekend (literally). Saturday, I woke up with a lightly beating headache. I opened my eyes and thought “okay…how bad are you going to get?” The day passed by with little to no drama and no escalation in the pain. I was thankful...
Hydrocephalus: Giving up alcohol makes way for sanity
I enjoy a good glass of wine just like most people. One of my favourite things to do is soak in a nice full bath with a glass of wine in hand. However, I decided just over a year ago to give it up completely because I realised it...
Hydrocephalus: It’s sometimes better to just forget
I am quite hard on myself when forgetting things. I forget that I tend to forget things…I also forget that there’s a very good reason why I do. My kids know I forget things and remind me quite easily about it too. I’ve read a few inspirational stories of...
Dealing with a chronic illness is not easy
I have Hydrocephalus but I’ll keep smiling. I wasn’t born with it, but was diagnosed 6 years after having my 2nd run with viral meningitis. The road has not been easy and I can literally say that my whole world changed the day I found out I needed a...