Intermittent : “Occurring at irregular intervals; not continuous or steady” Working in IT support for the last 20+ years, has definitely had its advantages. Take for example the word “intermittent“, something used more often than not when faced with an unexplainable technical issue. For me to understand this term in the context of my Hydrocephalus…
Where did you come from..? Why did you happen to my body..? What led to me being the “lucky” one to have to grin and bear you..? Why did you choose me..? I guess I’ll never know the answer to these questions… You caused an obstruction in the path of my cerebral aqueduct, making it…
Fighting against doctors while you believe that something is wrong with your shunt or ETV, feels like a daunting thing to do. Helpless is the number one feeling that comes to mind. I remember when my shunt was failing, I fought about as hard as I am now to be heard. If that experience has…
Hydrocephalus, the reason why you are part of certain Facebook groups, the reason why you troll the internet looking for help or answers to the myriad of questions you have. Either you, or someone you know and/or love has this condition. The Hydrocephalus Association in the USA does it right, in my opinion, for the…
Since my last post, I can’t really admit to feeling much better. I sincerely wish I could just lie and shake this shit off me. Click my fingers and voila! But alas… My MRI results have come back with normal ventricles and a patent stoma – Meaning, my ETV is doing just dandy…or is it?…
I’m not a very sporty person (evident from my physique)…I kid you not. However, in any competition I find myself up against, I will admit to being a bit of a sore loser. I might not be an extremist in this regard but I do feel the pangs of defeat a bit more than I…
My past experience has been somewhat different from where I am now. It almost feels like it could be worlds apart…in fact, that’s exactly where it’s at. Better..? Or worse..? Hmmm.. I left my home country, a few years after diagnosis, shunt surgery and eventual ETV, in search of and hopeful of better medical care…
In my last and final post on “How do you tell your boss you have Hydrocephalus?“. I’ve covered the past, where I was diagnosed while in full-time employment. And, I covered my present situation, having immigrated and starting a new job. Now, I’d like to take a closer look at any prospective employers. I suppose…
Past When I was first diagnosed, at age 29, I was a full-time employee. Therefore, my manager at the time was with me from the start of my Hydro journey. I remember clearly when I got the results from my CT scan and what happened after discussing the findings with the Neurologist (if only my…
This is a sensitive issue for any prospective parent. We have advanced so much that some conditions can be identified while your baby is still in the womb. I remember when I was pregnant with my first child, the gynaecologist explained that we could have a test done to see if our baby had Down…
