What no person with Hydrocephalus wants or needs to hear: “Most people I see are in a coma and…you look fine to me” – Neurosurgeon So does that mean I need to be in a coma for you to take me seriously? ********** “I get bad headaches too” – Family, colleagues and acquaintances I don’t…
I have only ONE out of the countless types of incurable conditions which exist at this point in time. ONE condition amidst ALL other illnesses and diseases that plague the human race. Therefore, I can only speak from the confines of that which afflicts me. I often hear the saying that “during times of difficulty,…
Before the start of this year’s awareness month, I didn’t have a plan of what I would do. However, a few days before, I felt a growing need inside of me to spread awareness simply because I recognise the need to shine a light on this invisible illness. It wasn’t about making this condition bigger,…
Most people say that your attitude towards something will determine how you deal with it (or any challenges presented). For the most part, I would tend to agree with this simply because I learnt a long time ago that if I let the negativity in, it might just consume me. Don’t misunderstand…I’m a realist by…
I’ve been “lucky” to not have daily headaches or symptoms related to Hydrocephalus. I have the odd episodes where I’m just knocked down physically and take a few days to recover. This can be anything from dizzy spells, nausea (sometimes vomiting). There have also been times where I’ve had headaches that lasted a few days…
Over the years of dealing with doctors, some have made me feel the need to (overly) explain why and how I developed Hydrocephalus. Almost as if to justify it… Granted it’s normal to be asked this at a first consult with a new doctor to give them the context and history they need, I’m not…
As I’ve mentioned before, I work in IT and have always had the approach that being proactive is better than being reactive. (In fact, this is my approach to life in general). If you have the opportunity to solve an issue before it becomes a problem, then why not do that? It’s like finding a…
Pressure…a thing that applied in any situation, in varying amounts, has different effects. Say, for example, the amount of “pressure” your boss puts on you at work or that you most likely put on yourself, will have a different effect than your screaming child throwing a tantrum. There’s a build up of emotion associated with…
There are a few ways in which Hydrocephalus and having had brain surgery affects us, some in more ways than others. Cognitive skills, memory issues, being indecisive…these are just a few examples. By nature, I “shoot from the hip/say it like it is, don’t take crap and can be quite straightforward” (sometimes to the detriment…
If you’ve been following my blog, you’ll know the challenges I’ve faced/am facing, just to be heard. Being told at my last consult, which always feels like it’s the last, “We’re just not going to operate on you because, you look fine and your tests show that too“. Going down the slippery slope after this…
