Surgery..again! It’s just over 3 months since my repeat ETV (brain surgery #6). I stared at a similar photo to the one at the top of this post last week, in my Endocrine surgeon’s waiting room. Having just had a consult with him and agreeing to go ahead with...
Articles with the Tag Hyperthyroidism
Know what imaging to ask for..
Imaging, we have so many of them – you get used to it. But, do you know what to ask for and why? I often wonder how the medical staff, looking at the images on the screen, know what it is they’re looking at. Don’t misunderstand. I know they...
Hydrocephalus : Recovery in progress – Investigations ongoing…
Don’t you sometimes wish you could just hang a “Recovery mode in progress…investigations ongoing” (or similar), sign around or near you? Since starting my website, I’ve tried to do a blog post at least once a week, sometimes more because I’m passionate about creating awareness on this condition. But,...
Migraines…evil twin or camouflage for Hydrocephalus?
Do you ever find yourself caught between not knowing if the pain in your head is just a headache, a migraine or the horrible beast, which is Hydrocephalus? I think it’s fairly easy to distinguish between just a normal headache and something more severe. There’s almost a point of escalation...
Diagnosis with…no clear direction, guidance or full disclosure
How many of you received your or your loved one’s Hydrocephalus diagnosis ticking one, all or more than one of the boxes above? When I was diagnosed, age 29, the word Hydrocephalus was entirely new to me. To say it was foreign, would probably be an understatement. I went...
“The real core of being a survivor is continuing to survive”
Life doesn’t always afford us the choice of whether or not we’ll survive what it throws at us. Be it a challenge at work, life in general, family matters, ill health, etc. Some of us have a little more on our plates to deal with than others which is...
Hydrocephalus the Elephant
Hydrocephalus has become…the elephant inside my head the room. The thing we never talk about, the thing people around me know exists but pretend is not there. The thing that, despite my trying to do the same as those around me (when in Rome, do as the Romans do), I’ve...
What do you do when you HAVE to be the strong one despite having Hydrocephalus?
Diagnosed at age 29, in full-time employment and a mother of 2 (now 3), I had no other choice but to be strong. The thing about being diagnosed with an invisible illness and going through 4 brain surgeries is that not even your own family gets it. They look...