Trusting your gut This is the ONE thing that I‘ve relied on the most. More importantly, I listened to my body. As I told Dr T, I don’t have a medical degree, but it’s the only thing I have to guide me. After having a shunt patency study on Monday, they’ve discovered a blockage at…
A week-long headache turned into dizziness and lightheadedness that felt very much like vertigo, with little to no appetite. Feeling like the world is spinning when you’re literally standing still, sitting and/or even laying down, is annoying and unnerving. A feeling akin to being on a rollercoaster, or out at sea, leaving you feeling nauseous…
Despite this long and winding road I’ve travelled, from: 🎯My rehab goal: To get back to employment in 2025🤔 TO ANYONE ELSE IN THIS SITUATION : While others may give up on you, you owe it to yourself to keep going❣️You are NOT “unemployable”. You are NOT “useless”. You have SKILLS. You CAN do this❣️…
If you’ve been diagnosed with Hydrocephalus and had brain surgery to treat it, does any of this resonate with you? If so, have you ever considered and looked into the effects of brain injury? More specifically, the cognitive effects. If you already have, this post might not be for you. Regardless, please feel free to…
There some things in life that no one can prepare you for… For example: Take a diagnosis like Hydrocephalus, an incurable condition, at a pivotal time in your life. An interruption to your norm with brain surgery being the ONLY treatment option, for the rest of your days. It could be 1, it could be…
As someone diagnosed with Hydrocephalus and living with a brain injury, this is a sore point, obviously. People don’t necessarily have to say they don’t believe your symptoms; their actions (or even inaction) speak loudly and clear enough. Seeing beyond an invisible illness or injury, is a difficult one, I get it. How can you…
Hydrocephalus and brain injury won’t define my outcome, I reserve that right!
It seems common for people to (incorrectly) assume that brain injury, causing cognitive impairment, is the same as intellectual disability. The extent of the injury will be dependent on the location of injury. In saying this, I do not presume to speak for the next person with a brain injury. But, I can attest to…
Despite hearing my surgeon speak, providing medical information, sound no longer filtered through my eardrum. After some time (I’m not sure how long), I drifted slowly back to the sound of his voice. I heard Dr Tollesson half thinking out loud; “How do you get a patient not to worry when you tell them they…
Finding the balance, living life with hydrocephalus and brain injury, is tricky. Relationships take strain and fall apart. The loss of some relationships has been sad for me. But I’m realizing that this is inevitable unless the required effort is made by all parties. Truthfully, some have been easier to let go of than others…Maintenance…
