This week has been an extremely poignant one in terms of loss for me. Isn’t it funny how one thing can have a ripple, snowball or even domino effect, sending everything cascading down? So many factors hitting home overall, life dealing cards that just seem so unfair, making me question so much and yet… My…
When you keep getting stuck with the wrong one… I’m starting to feel like the woman who attracts the wrong kind of man. The question I’m left with; “What am I doing wrong?” I go into my appointments and, quite honestly, the closer I get to them, the more anxious I become. I already know…
When someone asks me how I am in general, but especially, after a Hydro “episode”, I often respond with these 2 little words. It’s instinctive. The truth of the matter is, I don’t know that for sure. How do I truly know that I am fine..!? Fact is, I don’t (Truth). Surely, something must be…
I’ve had a few people say this to me. People at the end of their rope, dealing with pain and discomfort from living with Hydrocephalus, and some, living with more conditions/diseases on top of it all. I fully empathise and, in most cases, share their sentiment. More especially, today while I’m in the grips of…
I sometimes think this is such an unfair condition to have. One could argue and ask, compared to what? This would be a “relatively” fair enough question. But, I do feel, (as someone diagnosed with it, someone who knows the full extent of the pain and consequences of the diagnosis and, what you have to…
Last week I binge watched Lenox Hill, a documentary, currently playing on Netflix. Not everyone has the stomach for watching brain surgery or women giving birth. So, if you’re squeamish, don’t watch it. Me on the other hand, I find it interesting…brain surgery, that is. For some reason, I want to know what happens after…
I know this is probably an old topic but, for me, it never grows old simply because it affects me on a daily basis. I possibly haven’t labelled it as such before, but I do feel anxious when someone challenges me on the validity of my memory issues. There’s a noticeable build-up of fear, anticipation…
I have Hydrocephalus and I’ve had brain surgery to treat it. 5 thus far, in fact. I’ve had a VP Shunt, which has been removed and for the last 10 and a half years, an ETV. But…, this doesn’t mean anything in the grand scheme of the condition. Too many people across the world have had more brain surgeries because…
If anyone had ever said to me that I’d be using cannabis in any form, in my future, I think I would have asked them what they’re smoking. I’ve always been one to toe the line and always try to do the right thing…I still do, mostly. But what is the “right” thing when it…
I seem to learn more about myself and this condition every time… A week ago, I was in unimaginable pain and for the first time, I made the decision NOT to seek medical help. Thankfully my headache has gone since then, that in itself is a huge relief. I’m not back to my normal self…
