<span itemprop="name">Hydrocephalus: Floating Faithfully</span>

Hydrocephalus: Floating Faithfully

Floating Faithfully is a story, written from my own personal experiences, of the daily struggles I’ve endured and battles I’ve overcome while living with Hydrocephalus.

I hope to leave the reader educated on this condition, which affects millions (if not more) around the world and hopefully shine a light on the Hydroid world, which is bound to become lonely. Providing useful resources, in the form of support groups to help make the journey that much more bearable and emphasizing the message that You need to be your body’s voice and advocate as other people’s ignorance is their bliss.

Hydrocephalus does not discriminate…Awareness is needed to kick-start required funding for research towards a Cure. You can help spread the Word.



What others have to say:

Review by: Hydropioneer on Oct. 29, 2015 :
I was held captive with every word well written & easy to understand not like talking with doctors. I enjoyed the dialog sections which brought memories which were very descriptive & I found being born with congenital hydrocephalus very accurate. I believe she touched on every point even the short term memory issues but her long term was intact. The weather & how it rules us & the journal keeping which is one thing I stress to the people who I chat with through Facebook .
This author doesn’t miss a beat talking about how she wonders about the What if’s questions which we have no control but it doesn’t stop us from thinking about. The denial you go through before you finally change from “Why me to “Why Not Me” I just loved it from start to finish & wanting more. But I know for more of the story what it would entail & I wouldn’t wish this on anyone. Well let me change that maybe some of the doctors because they have no idea what we experience with this condition or at time disbelieve us.

Review by: Simon Alderman on Oct. 14, 2015 :
I love this book. It is written in the first person and tells the story of the authors struggles with her medical condition, Hydrocephalus. I really enjoyed the personal touch and emotion the author displayed in her story. I could really feel the struggle she was going through and was pulling for a positive outcome with every page turn.
This book is a great read for anyone who is dealing with hydrocephalus, whether they be a patient, a parent of a hydro child, or anyone who wants to learn more about this condition. This inspirational story shows that anything is possible if you keep fighting and never give up hope.
I too have hydrocephalus and will be writing my story very soon. I may be a little biased with this review because I not only felt her story from the words on the page, but I felt it also because I went through it as well. In any case, I think this book could be enjoyed by all who read it. I hope to see more from this author in the future.

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Published by Skyewaters

I blog about Hydrocephalus to give a voice to the millions (if not billions) of people around the world with this condition NOT disease.  As much as these experiences are unique to me and my family, I’m sure others have experienced it too.  My aim…to shine a light on it and raise awareness – simple and challenging at the same time but worth it!