6 years ago, I had 3 brain operations over a 3 day period. I can’t remember much about that time but last night, (the night before the first operation) I had a flashback. I could literally feel, hear and smell my surroundings. I saw myself lying on the bed...
Hydrocephalus
Being strong and independent can be your own worst enemy
I’ve been guilty of being too strong and independent for my own good. Because of this, the people (closest to me) in my life don’t give me a chance to ever be weak or needy. Truth be told, I don’t like depending on others for anything. I hate it...
Quality of life…how do you define that?
A few months ago, during a consultation with a Neurosurgeon, I was asked if my Hydrocephalus was affecting my quality of life. I got the impression that if my answer to this question was “Yes” I might have been facing surgery. I hadn’t been asked this before so it...
Don’t lose the focal point of what we have in common..
We all have one thing in common…We or Someone we love has Hydrocephalus. This in itself is enough to provide a link to sanity. Being able to converse with people (using terminology they understand) who can share your feelings, empathize with your symptoms and actually understand fully your paranoia...
Cognitive whirlpool
I can’t clearly remember when the first time was that I noticed the cognitive challenges I was facing. In fact, most people around me seemed to dumb it down or just plain dismiss the very notion from the start. I know I had memory issues especially after my first...
Do you ever just feel Angry because of it?
Do you ever feel like you just want to get angry at Hydrocephalus? Just the mere thought of it being a part of you or the person you love’s life? I have to admit, there have been times when I literally despised the fact that I have this condition....
For all the Hydro Moms and Dads
I’ve been meaning to write this post for a while now. In fact, today I decided will be the day since my hubby has just taken the kids out and I’m home alone. So the timing is perfect. This was a bit of a scary week for me as...
I’m so sorry I disturbed you doctor. Of course you know better than me…
When I woke up on Saturday morning with a headache and slept all weekend I should have known it couldn’t be anything serious. Even when I couldn’t keep my eyes open at work on Monday, I should have just gone home, popped some Panadol and had a good sleep....
On the wave of positivity
It’s easy to get dragged down into a whirlwind of despair and depression. This would be true of almost anything in life. Hydrocephalus is not an easily digested condition and having to explain it, almost on a daily basis ever since I released my book Hydrocephalus: Floating Faithfully, has...
Why is it so hard to find a good Neurosurgeon?
I feel disheartened…almost helpless. Ever since I was diagnosed with Hydrocephalus in 2007, I’ve felt like I’m fighting an uphill battle. It’s not with the condition so much, which has become a part of me and that I accept. But, with the medical professionals, I have to depend on...