That’s it for me. I’ll be closing my social media accounts and blog over the next few weeks. But, before I go, know this: Skyewaters has been a lifeline for me these past few years. Living with an invisible and incurable condition, is a challenge on SO many levels. Having to prove yourself and convince…
My brain can literally feel like a hornets nest (most of the time). A muddled space where thoughts, memories and information, go to die (a slow death). One coping strategy, that works (for me), is to reduce my cognitive load. I’ve had to learn a few and continue to do so, as I figure it…
Today marks two years since my repeat ETV. An operation that placed the cherry on my hydrocephalus cake. I’m navigating a brain injury caused by the bleed I had during surgery. It’s been hard to accept. It still is. (Time, patience and understanding is what I need, especially from myself. Easier said than done). So…
Part 1 of 2 That’s rhetorical! However, my question is sincere and this is why… Having hydrocephalus and enduring brain surgery (repeatedly) takes a toll on you. We never really know what the effects will be. Symptoms, surgery and recovery, may differ with each operation, per person. For those of us diagnosed with it, we…
She stood her ground and so did he. They are warriors of a different kind. In the days of war (I can only imagine), facing an unknown opponent, you have no idea what their strengths or weaknesses are. Nor, do you know, what tactical moves they will use to defeat you. You either fear them…
I never truly understood this saying. In fact, I suck at taking care of myself. This I know… It’s weird, I almost feel like I’m being selfish when I don’t respond to someone else’s request for help i.e. I can’t say NO. But, knowing myself, I can say with certainty that it’s not the same…
Something no one can prepare you for, is the moment your whole life changes. It doesn’t matter what it is really…you can read an article about something that happened to someone else and go, “Oh! That’s just so sad…” but you move on and forget. Then, life happens to you and everything changes. Sometimes it’s…
I’m not the kind of person who likes being told what to do. In fact, the more independent and self-sufficient I am, the better. My family know, despite their protests or advice when it comes to the way something needs to be done, I’ll still do what and how I want to. I’m stubborn like…
A question asked so often, it seems, by doctors. Is this a standard question? Maybe I’m missing something… It’s definitely one that, once asked, gets my back up. Inside, I cringe in anticipation…I take momentary offence and at some stage feel wounded with the knowledge of having been here before. A De Ja Vu moment of…
Anything which harms or penetrates the physical matter inside your head would constitute as a cause of brain injury. It can be caused by blunt force trauma to the head, something which doesn’t physically touch the brain itself but a blow to the head, hard enough to cause damage. Or, it can be an act…
