When I was diagnosed with Hydrocephalus, 16 years ago now, I had to find my tribe: People who knew and understood what I was going through, because they shared the same diagnosis. Support groups on Facebook were great but, starting my blog, Skyewaters.com, was a step in the right...
Articles with the Tag Memory and cognitive issues
Brain surgery: What you may not have considered…
Concussion, based on a true story, is currently playing on Netflix (until 9 June). It’s scary how being able to relate to something, so serious, can hit you so hard. Despite it being centred around the National Football League (NFL), the bottom line of this movie, and how it...
Brain bleeds are serious and need attention
2 years ago I posted this: There’s always risk with any operation. Despite having a brain bleed during surgery last week, the reason for the blood in my CSF, I feel fortunate to just wait it out and have the blood clear. The discomfort and side effects of nausea,...
When you feel like sinking to the bottom…
Today marks two years since my repeat ETV. An operation that placed the cherry on my hydrocephalus cake. I’m navigating a brain injury caused by the bleed I had during surgery. It’s been hard to accept. It still is. (Time, patience and understanding is what I need, especially from...
Ever feel like you’re losing your mind..? Part 2 of 2
For context, you can read Part 1 of 2 here. I’ve always been one to take care of others, especially my children. The thought of “slipping”, is leaving me feeling quite perplexed! C. A. Marriday I know there’s not much I can physically do to change any of what...
Do you ever just feel like a waste of space?
In one of my previous posts: “How I cope is much the same as being like a duck”, I talk about the best advice I was given by my ex-manager Ian, after my diagnosis and first brain surgery. I struggled at work, to get back to a version of...
Surgery again…but, thankfully, not brain surgery..!
It’s been a while since I’ve been able to focus enough and write. Recovery from brain surgery #6 is still ongoing but, every day is getting better…The Vitamin B and Ginkgo Biloba that I’ve been taking, is certainly showing the benefits in terms of my cognitive function. Even though...
I get so tired of the fight, all it’s detours and juncture points.
It’s not always the same fight but regardless, I’m tired. To quote a fellow Hydro sister: “I know I am here for God’s purpose and He knows my days here yet, I am tired of having to force my physical body to do what my spirit wants to do.”...
Hydrocephalus: The effect of loss…
This week has been an extremely poignant one in terms of loss for me. Isn’t it funny how one thing can have a ripple, snowball or even domino effect, sending everything cascading down? So many factors hitting home overall, life dealing cards that just seem so unfair, making me...
Hydrocephalus: Anxiety and Memory Issues
I know this is probably an old topic but, for me, it never grows old simply because it affects me on a daily basis. I possibly haven’t labelled it as such before, but I do feel anxious when someone challenges me on the validity of my memory issues. There’s...