In my last post, I mentioned that I had something to be grateful for and realised since then, there’s actually quite a few things, given my current situation. Firstly, I’m still breathing. That in itself is reason enough to be grateful. My job has kept my mind occupied and is a welcome distraction from all…
There seems to be a universal law when it comes to the way we are treated as Hydrocephalus patients. (Or, I’m just being overly sensitive – you be the judge of that). I know for a fact that, what I’ve experienced below and so many times before, is not unique to me alone. There are…
A few weeks ago, I wrote about the visual disturbances I’ve been experiencing. Something, which at the time, freaked me out (naturally). I went to the eye clinic upon my GPs insistence and walked away with a clean bill of eye health. However, I was told a referral would be done to the Neurosurgery clinic…
Some would say Hydrocephalus is not a big deal. I know quite a few people who have actually said this to me but, I also know quite a few who would claw your eyes out for uttering those words. (Ok, maybe not that extreme but they’d definitely take offence). Some people have their ignorance to…
I know that there are many people who are born with Hydrocephalus so, this question doesn’t really apply in that instance. It’s more posed at people like me, diagnosed at age 29. I had learnt all the basic skills I needed by then, had no difficulties of note and went about my day and life…
When you go from care (practically non-existent) to doctors using words like: “You are high risk”, “This is serious”, “This is important to get checked out, sooner rather than later”, it leaves you feeling unsettled. The only way I can think to best describe it is, being abused – becoming accustomed to that way of…
A few times now, I’ve had vision disturbances. Today was much like some of the other times. After initially freaking out, I reminded myself that it may just be a migraine starting. The Ophthalmologist I consulted with last year, helped me recognise the signs. But there’s no real migraine which follows. All I have, is…
Do you ever experience a sense of confusion, mixed with sadness, while talking about things you just can’t remember? I’m specifically talking about moments shared with family…or even close friends. Being close to family, after nearly 7 years, there are bound to be trips down memory lane. I’ve become more and more aware, of the…
For anyone with Hydrocephalus, have you ever experienced incontinence as a by-product of your symptoms? Personally, I haven’t so can’t speak from experience. However, I have read somewhere that when you have a fair amount of pressure build-up, you tend to urinate often. Just how true this is, I haven’t a clue. Thinking out loud: …
How much do you stop yourself from partaking in a discussion or giving your opinion on something? In a work situation for example – Do you ever feel yourself withdrawing because you feel less confident? Because you feel that your opinion isn’t valid or maybe you struggle to make sense of the thoughts in your…
