To say I have been well and truly prodded and poked would be about right! Sunday – MRI, Monday – Endoscopic ultrasound, Endoscopy and Colonoscopy (ugh!), and Tuesday – Thyroid nodule biopsy. The anaesthetist yesterday asked me about my medical history, very interested in my Hyperthyroidism and Hydrocephalus. Her questions were...
Articles with the Tag Hydrocephalus
Hydrocephalus: Invisible illness has a voice…
Hope. A word with so many different connotations, for different people, depending on their individual circumstances. Whether you’re the one diagnosed with Hydrocephalus or you know someone who is, it comes into play. And, since this is an incurable condition, your hope morphs as it ebbs and flows in...
Hydrocephalus: A hard way to learn what drugs to avoid!
Disclaimer: I’m writing this post in hindsight, which is a wonderful gift and at the tail end of practically poisoning myself, unknowingly. So, apologies in advance where needed…(Also, it’s not so much Hydro-related but no doubt a piece of my Hydro puzzle). NB. This drug might work for some...
Hydrocephalus: The effect of loss…
This week has been an extremely poignant one in terms of loss for me. Isn’t it funny how one thing can have a ripple, snowball or even domino effect, sending everything cascading down? So many factors hitting home overall, life dealing cards that just seem so unfair, making me...
Hydrocephalus: A pertinent question…
When you keep getting stuck with the wrong one… I’m starting to feel like the woman who attracts the wrong kind of man. The question I’m left with; “What am I doing wrong?” I go into my appointments and, quite honestly, the closer I get to them, the more...
Hydrocephalus: Saying “I’m fine…”
When someone asks me how I am in general, but especially, after a Hydro “episode”, I often respond with these 2 little words. It’s instinctive. The truth of the matter is, I don’t know that for sure. How do I truly know that I am fine..!? Fact is, I...
Hydrocephalus: When You’re At A Crossroad In Terms Of YOUR Care…
I sometimes think this is such an unfair condition to have. One could argue and ask, compared to what? This would be a “relatively” fair enough question. But, I do feel, (as someone diagnosed with it, someone who knows the full extent of the pain and consequences of the...
Hydrocephalus: Human being on the table…
Last week I binge watched Lenox Hill, a documentary, currently playing on Netflix. Not everyone has the stomach for watching brain surgery or women giving birth. So, if you’re squeamish, don’t watch it. Me on the other hand, I find it interesting…brain surgery, that is. For some reason, I...
Hydrocephalus: Anxiety and Memory Issues
I know this is probably an old topic but, for me, it never grows old simply because it affects me on a daily basis. I possibly haven’t labelled it as such before, but I do feel anxious when someone challenges me on the validity of my memory issues. There’s...
Hydrocephalus: Know. Understand. Appreciate…
I have Hydrocephalus and I’ve had brain surgery to treat it. 5 thus far, in fact. I’ve had a VP Shunt, which has been removed and for the last 10 and a half years, an ETV. But…, this doesn’t mean anything in the grand scheme of the condition. Too many people across the world...