It’s been harder than I anticipated. Maybe I rushed it. Maybe I didn’t rest enough. Or, maybe this time, brain surgery has taken its toll on me. I’ve been feeling like I need to be stronger than I am, in all areas of my life: physically, mentally and spiritually....
Articles with the Tag Hydrocephalus
Use the teachable moments when you find it.
Mahatma Gandhi: “Be the change you wish to see in the world.” Regardless of whether you’re advocating for yourself or someone you know/in your life who has Hydrocephalus, there’s a teachable moment, no matter how big or small. While I was in hospital a few weeks ago after my repeat...
Gert Tollesson, “saved my life and…my sanity!”
Gert Tollesson, aka Dr “O”, is the 15th specialist I’ve consulted with regarding my Hydrocephalus. Most of you, who follow my blog, will know the uphill battle I’ve had to climb to finally get to him! And, thank God I have!!! Words I would use to describe him: Kind,...
Pre-op consult and what you may want to consider…
A few days ago, I was faced with a heavy burden of having to fork out just shy of AU$5000 up front, which I normally keep under the mattress for a rainy day, like everyone else (sarcasm intended). It required an added level of perseverance and resourcefulness. Let’s just...
Money Or Your Life..?
It’s not an easy decision to make. It might seem obvious but reality dictates otherwise. And, unfairly so at times… I’m at a crossroad, one I’ve faced before, so many times. I finally found a surgeon who thinks outside the box and agrees my ETV is partially blocked. That...
Doctors shouldn’t be the reason why patients suffer…or die!
I’ve never been a person blessed with patience. If I had to be honest, I’m probably the least patient person I know! There’s so much waiting you have to do in-between doctors appointments, for test results and even the follow-up consult after the tests are done. In my last...
Dr “O” has done it!
Finally! I have someone who has listened, not just by acknowledging what I’m saying but by actually validating EVERYTHING I’ve been saying. He didn’t tell me I’m complex or try to palm me off on someone else. I felt genuinely listened to and experience so much empathy, which is...
Will you help get the conversation started..?
We Endure because we have to. We find ways to cope, survive and get through by being Resourceful. We gain Strength through and from it all, not by choice but, because there is none… People say: “You shouldn’t let your circumstances define you…” Hmmm…I say, there are times when...
Unreliable witness
What are your symptoms? How long do they last? Are there any triggers? What brings relief? Have you had these symptoms before? What else do you recall? What’s different this time? Blah…blah…blah… I often think that if I had to be part of a criminal investigation, where Hydrocephalus is...
Ever feel like you’re falling apart…literally?
I feel like I’m being “chipped” away piece by piece. Apparently some body parts you can live without, who knew? Some surgeries improve things and others bring more complications than you bargained for. This has been a consistent (almost rebellious) communication from the doctors I’ve spoken with over these...