I repeat this as soon as I catch myself being too hard on the one person who doesn’t need it: ME Brain surgery does not leave you unscathed…the after effects are real and, under the right circumstances, can have a negative effect! It’s what you do after the fact that matters most… Celeste A. Marriday…
When glass is shattered, you can try to piece it all back together, however, the cracks will show, altering the appearance. And, any tiny shards you may have missed, will undoubtedly leave some holes and weak spots. C. A. Marriday The risk of inaction As someone diagnosed with Hydrocephalus, we are often advised to remain…
Gert Tollesson, aka Dr “O”, is the 15th specialist I’ve consulted with regarding my Hydrocephalus. Most of you, who follow my blog, will know the uphill battle I’ve had to climb to finally get to him! And, thank God I have!!! Words I would use to describe him: Kind, Caring, Humble, Compassionate, Empath, Knowledgeable, Experienced,…
A few days ago, I was faced with a heavy burden of having to fork out just shy of AU$5000 up front, which I normally keep under the mattress for a rainy day, like everyone else (sarcasm intended). It required an added level of perseverance and resourcefulness. Let’s just say, the financial strain of brain…
It’s not an easy decision to make. It might seem obvious but reality dictates otherwise. And, unfairly so at times… I’m at a crossroad, one I’ve faced before, so many times. I finally found a surgeon who thinks outside the box and agrees my ETV is partially blocked. That leaves me with no other choice…
I’ve never been a person blessed with patience. If I had to be honest, I’m probably the least patient person I know! There’s so much waiting you have to do in-between doctors appointments, for test results and even the follow-up consult after the tests are done. In my last post, I mentioned that Dr O…
Finally! I have someone who has listened, not just by acknowledging what I’m saying but by actually validating EVERYTHING I’ve been saying. He didn’t tell me I’m complex or try to palm me off on someone else. I felt genuinely listened to and experience so much empathy, which is so rare in a Neurosurgeon. I…
Anyone who has followed my blog and knows my journey, would have an understanding of where I’m at. But, in the interest of those who aren’t aware, I’ll try to explain. After last week’s vision loss and subsequent headaches, I’ve had time to think (aka, silently freak out!). My initial thought was, if this is…
Today, the 2nd of December, marks 11 years since my emergency ETV was performed (the previous 2 day’s surgeries, were unsuccessful). 3 surgeries over 3 days, while 5 and a half months pregnant… Day 1 – VP shunt revision of a Medtronic Programmable Day 2 – VP shunt replacement with an Orbis Sigma Day 3…
There are days when I wish I couldn’t read people. The unspoken can sometimes be so loud. • A reaction to something said. • The change of tone in your voice. • The way your face changes: mouth, eyes, brows… • A shift in your posture and demeanour. • Even just silence through no verbal…
