I didn’t set out to be part of change. I also didn’t aim for a possible improvement to the current state of my injured brain. Regardless, I stay eternally hopeful. I am nevertheless, driven by sheer willpower and determination as I continue to make progress. I know my brain...
Articles with the Tag #BrainInjury
Medical gaslighting is abuse
I found this quote a while back, but it still resonates with me. More importantly, it validates my experiences thus far. Not only has it been true since my hydrocephalus diagnosis (May 2007), but it’s especially true following the Intracerebral Hemorrhage I had, during a repeat ETV (May 2021)....
What a whirlwind affair these last few years have been…
Despite this long and winding road I’ve travelled, from: 🎯My rehab goal: To get back to employment in 2025🤔 TO ANYONE ELSE IN THIS SITUATION : While others may give up on you, you owe it to yourself to keep going❣️You are NOT “unemployable”. You are NOT “useless”. You...
Hydrocephalus can feel like being on a journey without a destination
There’s no manual for surviving, or living with, hydrocephalus. The effects of the condition, and the consequences of treatment options, touch every aspect of a person’s life. Also, we all experience the condition differently. I still maintain, how YOU feel about YOUR own journey, is up to YOU. Don’t...
Brain surgery, it’s Not an easy decision
We are caught between a rock and a hard place with this condition, WANTING and NEEDING help to make the pain go away but, NOT wanting to endure MORE brain surgery. The irony does not escape me..! It’s not an easy thing to go through, by any stretch of...
Hydrocephalus: The heavy burden of being the main breadwinner despite living with an incurable condition…
A condition like Hydrocephalus casts some of its own burdensome moments on the person diagnosed with it, amongst other things. It’s unpredictable nature, leaves nothing to be desired. The burden wears heavy and so too does the responsibility of it all, like: Having to support your entire family –...