I’ve waited more than two weeks to hear about my ICP Monitoring results and eventually assumed that “No news, is good news”. And, as it turns out it is indeed the case. I should be relieved and happy, to say the least. But…I have mixed emotions… I requested a...
Articles with the Tag Brain surgery
Hydrocephalus: When you hear but don’t listen…
2 weeks ago, I had ICP Monitoring done (only my 5th Hydrocephalus-related surgery since being diagnosed just over 11 years ago). There were 2 things of note, amongst others, I took away from that experience: A nurse who looked at me surprisedly when I told her I have Hydrocephalus...
Hydrocephalus: What’s the reason why doctors “refuse” to help patients?
I remember a time when things were so simple, medically speaking. You felt unwell, went to the doctor and they actually helped you. Illnesses like Cancer, which everyone knows has a slim chance of survival, depending on the stage it’s at (but it’s possible), were/are accepted for the fatal...
Hydrocephalus: What is the right frame of mind?
This question pertains just as much to someone who has recently been diagnosed with Hydrocephalus as it does to someone facing brain surgery, which is never easy. For me personally, it doesn’t matter that people say one procedure is “not as bad” as the next, it doesn’t stop me...
Hydrocephalus: When the thought of brain surgery “excites” you
You’re probably wondering if I’ve completely lost my mind or how I can say that, well that’s because it’s only one of the emotions I feel right now – along with fear and anxiety. It may not be an ETV or Shunt surgery but it’s brain surgery nonetheless. The...
“A little Angel just got (their) wings”
A child dying will grab anyone’s attention, no matter the circumstances. It’s not to say that adults are less important but there’s just a definitive difference. In the Hydro community I know it affects each and every one of us, without a doubt. I find that it affects me...
People with Hydrocephalus look no different to you…
We walk among you, have hopes, dreams and fears. We are employees, parents, children, students, adults, senior citizens and more. Anyone at any age can receive their diagnosis – we are not all born with it. But, those who are, experience their first brain surgery hours, even days, after...
Hydrocephalus: Yeah…I’m talking to you!
Wherever I was in my life when you appeared (like a phantom) on the scene, doesn’t even matter anymore. Whatever was going on, whatever I regarded as important at the time…overtaken by the enormity of you. You threw me for a loop and left me spinning aimlessly, wandering on...
Inside a Neurosurgeons head…
I didn’t actually mean that literally 🙂 I just finished reading “Do no harm” by Henry Marsh a little while back. A book, written from the perspective and view of a Neurosurgeon providing some insight to its reader, on what its like to be on the other side. Something attracted...
Stronger now than I was going in…
I find this line applicable to so many areas of my life. Experience truly does come with time (and age). No matter how much someone forewarns you or tells you about the possible outcomes for any given situation, we all learn from experience. It’ll be a positive or (in...