“Hopefully by the end of this month all the medical drama will come to an end…” I uttered these words to a friend today and heard a little voice mocking me, saying: “Are you sure about that..?“. Truth is, saying these words is like making a promise, you know...
Articles with the Tag Brain surgery
Hydrocephalus: Rest In Peace Josh and Rise In Glory
I’ve been known to get quite “emotional” about things, it’s in my DNA, something I accept, the older I get. It’s what defines me… Aside from this, I carry my heart on my sleeve and feel the pain or joy of others. I think this must be why it’s...
Hydrocephalus: Would you tell your child they have it..?
Preparing yourself about all that Hydrocephalus encompasses, is probably the wisest thing you could do. I almost feel compelled to write this post today. To give you some perspective. I recently, had a chat with someone who told me about a young child (about 12 years old) whose parents...
Hydrocephalus : Ageing just one more “obstacle”…
Obstacles are usually things you can overcome or navigate around…So, maybe saying “Ageing” is an obstacle, isn’t entirely right. Meh! My 8-year-old daughter, constantly tells me “Mum you’re getting old”, as if to console me. This is usually in response to my reaction when I either forget stuff or...
Hydrocephalus : Recovery in progress – Investigations ongoing…
Don’t you sometimes wish you could just hang a “Recovery mode in progress…investigations ongoing” (or similar), sign around or near you? Since starting my website, I’ve tried to do a blog post at least once a week, sometimes more because I’m passionate about creating awareness on this condition. But,...
Hydrocephalus: Process of elimination is backward, with treatment failure (Shunt/ETV), being first…
Feeling ill could be caused by anything, I know that… I’d be lying if I said, at the first sign of a headache, I don’t get my back up against a wall. Even being overcome with nausea and loss of appetite has me wondering if it’s the start of “something“. ...
Ventriculo-ureteral shunt – Have you ever heard of this before..?
When I said before that there’s never a dull moment with this condition, I should have added that “There’s always something new to learn about, that you haven’t heard of before”. My family and I have recently moved to Brisbane, Australia. A new job, family and the hope of...
Hydrocephalus: A ticking time bomb…
You don’t know when, you don’t know how…but, you know it will. Each day goes by, turning into a week, a month…a year. Moments of happiness, moments of sadness and…moments in between. Regardless thereof…the aching pain inside your head reminds you of your own reality. People come and people...
Hydrocephalus: An idea is brewing…
There’s something which tugs my heart strings even more than the fact that so many people with Hydrocephalus endure endless brain surgeries. Children, babies to be more specific, the most vulnerable of all who go through this. As a mother, I’d be lying if I said it doesn’t stir...
Hydrocephalus: Some food for thought…
I can be angry that life dealt me the Hydro card. I can curse everything under, around or above the sun…but, it won’t make a difference. 29 years old and living a reasonably sheltered life (as far as this condition goes), that’s the reality I faced before I read...