Non-invasive brain sensor to measure intracranial pressure. From reactive to proactive!
Is it my shunt, or something else..?
While you feel like crap, you convince yourself you’re imagining it. And, there’s probably nothing wrong.
Technology at the heart of an incurable brain condition
One can almost not imagine a world without technology these days. So, it makes sense that advancements in the medtech space moves into the arena of neurological conditions. ICP (Intracranial pressure) monitoring The physical sensor I had placed in 2021 to have ICP monitoring done. What can I say, I...
Hydrocephalus: The silent assassin
Hydrocephalus does NOT discriminate. There’s no single cause and more people are diagnosed with it, than you, or I, could ever know. Globally! It really is a silent assassin. One you can’t see coming. Awareness and education provide the best armour. Saying; “It won’t happen to me”, is no...
Be the change you wish to see in the world or, at the very least, be part of it.
I didn’t set out to be part of change. I also didn’t aim for a possible improvement to the current state of my injured brain. Regardless, I stay eternally hopeful. I am nevertheless, driven by sheer willpower and determination as I continue to make progress. I know my brain...
Medical gaslighting is abuse
I found this quote a while back, but it still resonates with me. More importantly, it validates my experiences thus far. Not only has it been true since my hydrocephalus diagnosis (May 2007), but it’s especially true following the Intracerebral Hemorrhage I had, during a repeat ETV (May 2021)....
Blocked shunt valve: Why trusting your gut is important!
I didn’t quite spot my treatment failure this time, at least not as I would have liked to. My previous shunt, a Sophysa Polaris (A.K.A. Sophy) was placed on 23 April 2022. If only shunts came with a warranty or refund policy. Given their high failure rate, I suppose...
VP shunt obstruction leads to brain surgery #8.
Trusting your gut This is the ONE thing that I‘ve relied on the most. More importantly, I listened to my body. As I told Dr T, I don’t have a medical degree, but it’s the only thing I have to guide me. After having a shunt patency study on...
Shunt patency study is on the cards
A week-long headache turned into dizziness and lightheadedness that felt very much like vertigo, with little to no appetite. Feeling like the world is spinning when you’re literally standing still, sitting and/or even laying down, is annoying and unnerving. A feeling akin to being on a rollercoaster, or out...
What a whirlwind affair these last few years have been…
Despite this long and winding road I’ve travelled, from: 🎯My rehab goal: To get back to employment in 2025🤔 TO ANYONE ELSE IN THIS SITUATION : While others may give up on you, you owe it to yourself to keep going❣️You are NOT “unemployable”. You are NOT “useless”. You...