Finally! I have someone who has listened, not just by acknowledging what I’m saying but by actually validating EVERYTHING I’ve been saying. He didn’t tell me I’m complex or try to palm me off on someone else. I felt genuinely listened to and experience so much empathy, which is so rare in a Neurosurgeon. I…
Have you ever had a consult with a specialist for Hydrocephalus and walked away feeling like they simply didn’t listen? Or, maybe you read their report after your consult, and think: “Thats not what I said!”, feeling deflated by the same token. If you have, you are not alone! I’ve simply lost my confidence and…
When you keep getting stuck with the wrong one… I’m starting to feel like the woman who attracts the wrong kind of man. The question I’m left with; “What am I doing wrong?” I go into my appointments and, quite honestly, the closer I get to them, the more anxious I become. I already know…
I seem to learn more about myself and this condition every time… A week ago, I was in unimaginable pain and for the first time, I made the decision NOT to seek medical help. Thankfully my headache has gone since then, that in itself is a huge relief. I’m not back to my normal self…
It’s no secret, money makes this world go round. (Some may suggest other things do but…). This week, I’ve been reminded again just how expensive, inconvenient and burdensome this condition is in my life. At my last visit, the Neurosurgeon told me to see an Ophthalmologist and also to get an MRI of my brain…
With my last post about Hydrocephalus being the 3rd party in your marriage, this one seems quite apt to follow. This condition does not play fair. It robs you of so much: time, relationships, money, memory, sanity…so much. But it’s a union where you don’t get to call it quits unless you actually check out…
Complex and complicated, two words that have been used, my entire life it seems, to describe any medical condition I’ve had over the years. My parents have told me that the reason for sending me to live with my grandparents at a very young age was because I was “a very sick child”. They can’t…
Why hasn’t it crossed my mind before? Only after my visit to the Neurosurgeon on Monday, did I think to build a timeline of “episodes”. Looking through all my blogs, I found a pattern and almost feel like I’ve been sounding like a broken record over the years. (Apologies to anyone who discovered this little…
