We Endure because we have to. We find ways to cope, survive and get through by being Resourceful. We gain Strength through and from it all, not by choice but, because there is none… People say: “You shouldn’t let your circumstances define you…” Hmmm…I say, there are times when...
Articles with the Tag #HydrocephalusAwarenessMatters
Hydrocephalus: Have you ever considered the potential risk of radiation (i.e. Cancer) over time? What would your risk appetite be?
Stupid question (partially)…I know! “Like other X-ray imaging exams, CT scans expose you briefly to a small, targeted amount of ionizing radiation. The radiation helps create an image of structures inside your body. At the low doses of radiation, a CT scan uses, your risk of developing cancer from...
Hydrocephalus: When do you stop searching?
One clear challenge I’ve experienced personally, and seen others with Hydrocephalus struggle with, is finding a good Neurosurgeon/medical team. We encourage each other to not give up, to keep searching for that one doctor who will listen. It’s not uncommon to feel unheard or be disappointed by the medical...
Hydrocephalus: Know, Understand…Appreciate!
I have Hydrocephalus and have had brain surgery to treat it, 5 thus far. But.., this doesn’t mean anything in the grand scheme of the condition. Too many people across the world have had more brain surgeries because of it, which is also the number one reason for brain surgery in children (some...
Hydrocephalus: Invisible illness has a voice…
Hope. A word with so many different connotations, for different people, depending on their individual circumstances. Whether you’re the one diagnosed with Hydrocephalus or you know someone who is, it comes into play. And, since this is an incurable condition, your hope morphs as it ebbs and flows in...
Hydrocephalus: The tides we face…
Anyone who knows me, knows how much I love the ocean. A beach house, right next to or on the sand will be my wish come true. With that said, I don’t for one moment take for granted the powerful beauty it possesses. However, as much as I love...