Do you ever find yourself caught between not knowing if the pain in your head is just a headache, a migraine or the horrible beast, which is Hydrocephalus? I think it’s fairly easy to distinguish between just a normal headache and something more severe. There’s almost a point of escalation you reach, where the pain just…
If you’ve been following my blog, you’ll know the challenges I’ve faced/am facing, just to be heard. Being told at my last consult, which always feels like it’s the last, “We’re just not going to operate on you because, you look fine and your tests show that too“. Going down the slippery slope after this…
Intermittent : “Occurring at irregular intervals; not continuous or steady” Working in IT support for the last 20+ years, has definitely had its advantages. Take for example the word “intermittent“, something used more often than not when faced with an unexplainable technical issue. For me to understand this term in the context of my Hydrocephalus…
I’m not a very sporty person (evident from my physique)…I kid you not. However, in any competition I find myself up against, I will admit to being a bit of a sore loser. I might not be an extremist in this regard but I do feel the pangs of defeat a bit more than I…
There are so many things going through my mind, all at once…I feel anxious, scared and yet prepared for the worst. I’m in combat mode in case I get an answer to my prayer that “something is wrong“. Yes, my prayer…It’s the one thing I’ve been praying for ever since the surgeon told me he…
Monday, I had an appointment with Dr H whom I had seen before, a few years back (In my book Hydrocephalus: Floating Faithfully, I started using letters of the alphabet instead of real names for doctors whom I’ve consulted with since diagnosis. I hope I don’t end up at Z). I opted to consult with him because of…
***I wrote this post and intended to publish it before my last one. But, I never got around to it because of what happened.*** I’ve been trying to go days, weeks even where I just forget I have Hydrocephalus. I thought I was doing well but there’s a little card in my phone pouch that reminds…
There’s something that gets me each time…the realization that my world is filled with “Could it be..?” or “What if it’s..?” When I got my diagnosis of Hydrocephalus and subsequent shunt placement, these questions were probably the most commonly asked. If I felt anything out of the ordinary, the first thing I suspected was my…
This will probably be the final post on the ETV Failure Guinea Pig topic from me (unless something significant happens and I live to tell the tale)…I have been patiently waiting to see the Neurosurgeon I consulted with last year to discuss the sleeping episodes I’ve been having. I was hopeful that he would be…
The past weekend was one for the books. I had another episode of sleeping the days away. I was going to write this post with a morbid feel to it…because that’s how I’ve been feeling the last few days. Then, a little while ago, I decided to hell with it! I won’t. Because doing so…
