Some time ago, I asked the question “Will there ever be a cure?” The general consensus was “Highly unlikely…”, not something anyone wants to hear (I for one, don’t). But, being a realist, I could see why this response had a common trend. In short, there are too many...
Articles with the Tag Hope
Do you have a backup plan?
My experiences over the last while have certainly not been unique to me (Confirmed by the comments and messages I’ve received). This past week, I have had various reactions consisting of outbursts and crying when I’m alone because of sheer helplessness and more. I regrouped and put my thinking...
Hydrocephalus: Will there ever be a cure?
The number of people undergoing shunt surgery over the last while seems to be on the increase. Maybe I see this because of the number of friend requests and follows I’ve received on Facebook as Skyewaters, who knows. You know what it’s like when you buy a new car,...
Hydrocephalus: Another year without brain surgery…Woo Hoo!
8 years today exactly…that’s how long it’s been since my last brain surgery. 3 operations over 3 days (5 and a half months pregnant) and yet, here I am, writing this post. 8 years since I had my emergency ETV (having surpassed the 5-year mark the surgeon told me,...
Hydrocephalus : Passing an ETV post op hurdle
2 December marks my 7 year post op hurdle. I’ve done it…defied the odds! (She says optimistically). I was told after my operation, that the ETV could close and it normally happens within 5 years. Whether I’ve come to the end of the track or am charging ahead toward...
Happy Thanksgiving…
Yesterday Facebook notified me of Thanksgiving. I personally have never celebrated it but when I saw it with the suggestion to wish people on my Friends list…I thought “Why not?“. It doesn’t matter whether or not I celebrate a special day to be thankful. What matters is what it...
A glimmer of hope in a long lost memory
6 years ago, I had 3 brain operations over a 3 day period. I can’t remember much about that time but last night, (the night before the first operation) I had a flashback. I could literally feel, hear and smell my surroundings. I saw myself lying on the bed...