We Endure because we have to. We find ways to cope, survive and get through by being Resourceful. We gain Strength through and from it all, not by choice but, because there is none… People say: “You shouldn’t let your circumstances define you…” Hmmm…I say, there are times when...
Articles with the Tag Hope
Hydrocephalus : More than just a dream…
Some time ago, I asked the question “Will there ever be a cure?” The general consensus was “Highly unlikely…”, not something anyone wants to hear (I for one, don’t). But, being a realist, I could see why this response had a common trend. In short, there are too many...
Do you have a backup plan?
My experiences over the last while have certainly not been unique to me (Confirmed by the comments and messages I’ve received). This past week, I have had various reactions consisting of outbursts and crying when I’m alone because of sheer helplessness and more. I regrouped and put my thinking...
Hydrocephalus: Will there ever be a cure?
The number of people undergoing shunt surgery over the last while seems to be on the increase. Maybe I see this because of the number of friend requests and follows I’ve received on Facebook as Skyewaters, who knows. You know what it’s like when you buy a new car,...
Hydrocephalus: Another year without brain surgery…Woo Hoo!
8 years today exactly…that’s how long it’s been since my last brain surgery. 3 operations over 3 days (5 and a half months pregnant) and yet, here I am, writing this post. 8 years since I had my emergency ETV (having surpassed the 5-year mark the surgeon told me,...
Hydrocephalus : Passing an ETV post op hurdle
2 December marks my 7 year post op hurdle. I’ve done it…defied the odds! (She says optimistically). I was told after my operation, that the ETV could close and it normally happens within 5 years. Whether I’ve come to the end of the track or am charging ahead toward...
Happy Thanksgiving…
Yesterday Facebook notified me of Thanksgiving. I personally have never celebrated it but when I saw it with the suggestion to wish people on my Friends list…I thought “Why not?“. It doesn’t matter whether or not I celebrate a special day to be thankful. What matters is what it...
A glimmer of hope in a long lost memory
6 years ago, I had 3 brain operations over a 3 day period. I can’t remember much about that time but last night, (the night before the first operation) I had a flashback. I could literally feel, hear and smell my surroundings. I saw myself lying on the bed...