Hydrocephalus: Being around people who understand the language you’re speaking

As a person living with Hydrocephalus, be it yourself or someone close to you affected by this condition, it’s easy enough to understand the medical terminology.  Well, at least better than anyone who is just an “acquaintance” of this condition. I remember when I was first diagnosed and heard...

Medical Alert Card

Do you have an alert card?  Something which identifies your condition in an emergency situation.  I’ve been searching endlessly for one standard, something that will “speak” for me when or if I can’t.  Trying to find something specific to ETV has been a fruitless exercise (Though this card can...