What would you do to give yourself peace of mind?
There are no guarantees with this condition. But you do what you can, with what you have.
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Technology at the heart of an incurable brain condition
One can almost not imagine a world without technology these days. So, it makes sense that advancements in the medtech space moves into the arena of neurological conditions. ICP (Intracranial pressure) monitoring The physical sensor I had placed in 2021 to have ICP monitoring done. What can I say, I like souvenirs. My neurosurgeon was good…
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Hydrocephalus: The silent assassin
Hydrocephalus does NOT discriminate. There’s no single cause and more people are diagnosed with it, than you, or I, could ever know. Globally! It really is a silent assassin. One you can’t see coming. Awareness and education provide the best armour. Saying; “It won’t happen to me”, is no guarantee. Thanks to having viral meningitis,…
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Brain injury: The missing piece you need to think about
If you’ve been diagnosed with Hydrocephalus and had brain surgery to treat it, does any of this resonate with you? If so, have you ever considered and looked into the effects of brain injury? More specifically, the cognitive effects. If you already have, this post might not be for you. Regardless, please feel free to…
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My tired is tired..! Yet this post image, is my constant prayer
There some things in life that no one can prepare you for… For example: Take a diagnosis like Hydrocephalus, an incurable condition, at a pivotal time in your life. An interruption to your norm with brain surgery being the ONLY treatment option, for the rest of your days. It could be 1, it could be…
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Faking being OK when you’re physically not, is far harder than faking being sick.
As someone diagnosed with Hydrocephalus and living with a brain injury, this is a sore point, obviously. People don’t necessarily have to say they don’t believe your symptoms; their actions (or even inaction) speak loudly and clear enough. Seeing beyond an invisible illness or injury, is a difficult one, I get it. How can you…
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Brain Injury: The invisible disability.
Hydrocephalus and brain injury won’t define my outcome, I reserve that right!
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Cognitive impairment is NOT the same as intellectual disability
It seems common for people to (incorrectly) assume that brain injury, causing cognitive impairment, is the same as intellectual disability. The extent of the injury will be dependent on the location of injury. In saying this, I do not presume to speak for the next person with a brain injury. But, I can attest to…
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Brain injury wreaks havoc on relationships so protect your heart
Finding the balance, living life with hydrocephalus and brain injury, is tricky. Relationships take strain and fall apart. The loss of some relationships has been sad for me. But I’m realizing that this is inevitable unless the required effort is made by all parties. Truthfully, some have been easier to let go of than others…Maintenance…
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Cognitive Impairment: Advice For Dealing With This Life Changing Event
My top piece of advice in this instance, NEVER give up on yourself! I feel like I’ve been neglecting my website, that includes anyone who follows this blog. For that, I do apologise. Unfortunately, it’s not entirely within my control. Nevertheless, I also know it is far from the truth. In fact, I’ve been working…
