“Hopefully by the end of this month all the medical drama will come to an end…” I uttered these words to a friend today and heard a little voice mocking me, saying: “Are you sure about that..?“. Truth is, saying these words is like making a promise, you know...
Hydrocephalus : When diagnostic tests show everything as “normal”…
“Normal” . What the hell does that mean anyway..? Do you ever just get a tad cheesed off by results which show “normal”? When you feel all the discomfort which spurs you on to seek medical help, yet test results show “nothing is wrong“. I think it’s a very...
Hydrocephalus: Rest In Peace Josh and Rise In Glory
I’ve been known to get quite “emotional” about things, it’s in my DNA, something I accept, the older I get. It’s what defines me… Aside from this, I carry my heart on my sleeve and feel the pain or joy of others. I think this must be why it’s...
Hydrocephalus: Would you tell your child they have it..?
Preparing yourself about all that Hydrocephalus encompasses, is probably the wisest thing you could do. I almost feel compelled to write this post today. To give you some perspective. I recently, had a chat with someone who told me about a young child (about 12 years old) whose parents...
Hydrocephalus : Ageing just one more “obstacle”…
Obstacles are usually things you can overcome or navigate around…So, maybe saying “Ageing” is an obstacle, isn’t entirely right. Meh! My 8-year-old daughter, constantly tells me “Mum you’re getting old”, as if to console me. This is usually in response to my reaction when I either forget stuff or...
Hydrocephalus : Recovery in progress – Investigations ongoing…
Don’t you sometimes wish you could just hang a “Recovery mode in progress…investigations ongoing” (or similar), sign around or near you? Since starting my website, I’ve tried to do a blog post at least once a week, sometimes more because I’m passionate about creating awareness on this condition. But,...
Hydrocephalus: Process of elimination is backward, with treatment failure (Shunt/ETV), being first…
Feeling ill could be caused by anything, I know that… I’d be lying if I said, at the first sign of a headache, I don’t get my back up against a wall. Even being overcome with nausea and loss of appetite has me wondering if it’s the start of “something“. ...
Ventriculo-ureteral shunt – Have you ever heard of this before..?
When I said before that there’s never a dull moment with this condition, I should have added that “There’s always something new to learn about, that you haven’t heard of before”. My family and I have recently moved to Brisbane, Australia. A new job, family and the hope of...
Hydrocephalus: A ticking time bomb…
You don’t know when, you don’t know how…but, you know it will. Each day goes by, turning into a week, a month…a year. Moments of happiness, moments of sadness and…moments in between. Regardless thereof…the aching pain inside your head reminds you of your own reality. People come and people...
Hydrocephalus : The effects run deeper than just physical pain…
It’s been 9 years since I last had brain surgery, excluding the ICP monitoring I had a few months back. I feel fortunate, for lack of a better word, compared to others who endure more harrowing times. The moments in-between where I questioned and wondered if what I was...