When I said before that there’s never a dull moment with this condition, I should have added that “There’s always something new to learn about, that you haven’t heard of before”. My family and I have recently moved to Brisbane, Australia. A new job, family and the hope of...
Hydrocephalus: A ticking time bomb…
You don’t know when, you don’t know how…but, you know it will. Each day goes by, turning into a week, a month…a year. Moments of happiness, moments of sadness and…moments in between. Regardless thereof…the aching pain inside your head reminds you of your own reality. People come and people...
Hydrocephalus : The effects run deeper than just physical pain…
It’s been 9 years since I last had brain surgery, excluding the ICP monitoring I had a few months back. I feel fortunate, for lack of a better word, compared to others who endure more harrowing times. The moments in-between where I questioned and wondered if what I was...
Hydrocephalus: When your family relies on you for…(just about) everything
I have no doubt there are many of us, who are relied upon by our families, to be the one who holds it all together. I especially know this is highly likely if you weren’t born with Hydrocephalus (though not limited to) but, diagnosed later in life, like me. ...
Hydrocephalus : Are you ever hesitant to start over?
There are so many situations we are presented with in life, where we need to start over. Some situations we shy away from and tell ourselves “Its not worth it” and, I guess (given the circumstances at the time), we’d be right. Some situations, however, require us to start...
Hydrocephalus: Do you have a Hydro buddy?
I often think back on what I’ve been through and how far I’ve come since I was first diagnosed a few years ago. What life was like before, escapes me a bit though, simply because there are parts I just don’t remember. I do, however, remember how it felt...
Hydrocephalus: An idea is brewing…
There’s something which tugs my heart strings even more than the fact that so many people with Hydrocephalus endure endless brain surgeries. Children, babies to be more specific, the most vulnerable of all who go through this. As a mother, I’d be lying if I said it doesn’t stir...
Hydrocephalus: Some food for thought…
I can be angry that life dealt me the Hydro card. I can curse everything under, around or above the sun…but, it won’t make a difference. 29 years old and living a reasonably sheltered life (as far as this condition goes), that’s the reality I faced before I read...
Hydrocephalus: Never underestimate this condition
When it comes to Hydrocephalus, I don’t underestimate anything, especially not what I’d do for myself. Not everyone will agree with the way you handle this condition, not everyone will understand your motivations or your disappointments. Truth be told, for some of us, this condition is less of a...
Hydrocephalus: Some conversations aren’t worth having…
Is it really worth having a conversation with someone who doesn’t understand what Hydrocephalus is all about? (I’m not talking about Awareness or education because that will always be worth it). Someone who doesn’t get that this is a serious condition, requiring immediate action, in some cases? Someone who...