Skyewaters

I blog about Hydrocephalus to give a voice to the millions (if not billions) of people around the world with this condition NOT disease.  As much as these experiences are unique to me and my family, I’m sure others have experienced it too.  My aim…to shine a light on it and raise awareness – simple and challenging at the same time but worth it!

Hydrocephalus: How much do you “lie” to appease someone else’s response to the reality you face, of living with ill health?

“Hopefully by the end of this month all the medical drama will come to an end…” I uttered these words to a friend today and heard a little voice mocking me, saying: “Are you sure about that..?“.  Truth is, saying these words is like making a promise, you know...

Hydrocephalus : Recovery in progress – Investigations ongoing…

Don’t you sometimes wish you could just hang a “Recovery mode in progress…investigations ongoing” (or similar), sign around or near you? Since starting my website, I’ve tried to do a blog post at least once a week, sometimes more because I’m passionate about creating awareness on this condition.  But,...

Hydrocephalus: Process of elimination is backward, with treatment failure (Shunt/ETV), being first…

Feeling ill could be caused by anything, I know that…  I’d be lying if I said, at the first sign of a headache, I don’t get my back up against a wall.  Even being overcome with nausea and loss of appetite has me wondering if it’s the start of “something“. ...