A few weeks ago, I wrote about the visual disturbances I’ve been experiencing. Something, which at the time, freaked me out (naturally). I went to the eye clinic upon my GPs insistence and walked away with a clean bill of eye health. However, I was told a referral would...
Hydrocephalus: Do you ever downplay your condition? If you do, do you think it affects how others react or respond to you?
Some would say Hydrocephalus is not a big deal. I know quite a few people who have actually said this to me but, I also know quite a few who would claw your eyes out for uttering those words. (Ok, maybe not that extreme but they’d definitely take offence). ...
Hydrocephalus: Do you ever wish you could just go back to before you knew you had Hydro?
I know that there are many people who are born with Hydrocephalus so, this question doesn’t really apply in that instance. It’s more posed at people like me, diagnosed at age 29. I had learnt all the basic skills I needed by then, had no difficulties of note and...
Hydrocephalus: Eye trouble and the stress of not knowing…
When you go from care (practically non-existent) to doctors using words like: “You are high risk”, “This is serious”, “This is important to get checked out, sooner rather than later”, it leaves you feeling unsettled. The only way I can think to best describe it is, being abused –...
Hydrocephalus: Brain injury is hard to deal with, comprehend and explain to others.
Do you ever experience a sense of confusion, mixed with sadness, while talking about things you just can’t remember? I’m specifically talking about moments shared with family…or even close friends. Being close to family, after nearly 7 years, there are bound to be trips down memory lane. I’ve become...
Hydrocephalus : Let’s talk Incontinence…
For anyone with Hydrocephalus, have you ever experienced incontinence as a by-product of your symptoms? Personally, I haven’t so can’t speak from experience. However, I have read somewhere that when you have a fair amount of pressure build-up, you tend to urinate often. Just how true this is, I...
Hydrocephalus: Are we our own worst enemies?
How much do you stop yourself from partaking in a discussion or giving your opinion on something? In a work situation for example – Do you ever feel yourself withdrawing because you feel less confident? Because you feel that your opinion isn’t valid or maybe you struggle to make...
Hydrocephalus : What I wish you knew…
Just because I’ve had brain surgery does NOT mean I’m cured. There is NO cure – that’s the reality of the condition. If I have to face it then…it shouldn’t be too hard for you. And, just because I’ve accepted my reality, doesn’t mean I’m being negative. If anything,...
Hydrocephalus: The tides we face…
Anyone who knows me, knows how much I love the ocean. A beach house, right next to or on the sand will be my wish come true. With that said, I don’t for one moment take for granted the powerful beauty it possesses. However, as much as I love...
Hydrocephalus : How does a mother “take it easy”?
I’m a mother of 3, living with Hydrocephalus for the last 12 years, since diagnosis. For the most part, I’ve had a “good run” with the effects of the condition (well, as good as it gets, I suppose). Funny thing is, life didn’t exactly give way when it decided...