Skyewaters

I blog about Hydrocephalus to give a voice to the millions (if not billions) of people around the world with this condition NOT disease.  As much as these experiences are unique to me and my family, I’m sure others have experienced it too.  My aim…to shine a light on it and raise awareness – simple and challenging at the same time but worth it!

The change within…

Hydrocephalus is by no means easy to live with The constant brain surgeries, doctors second guessing what you’re saying, refusing to help you, uncertainty and endless worrying. The list goes on… The biggest one, overall, was losing my vision intermittently. It scared me…Brain surgery #6 resolved all of that....

Does the world turn its back on you, once you’re diagnosed with an incurable condition..?

I know not everyone will agree with this post, and I’m OK with that. But, I’d like to believe that some of what I have to say, will resonate with people who have actually experienced it. For those who have, I hope this gives you a voice… My humble...