Skyewaters

I blog about Hydrocephalus to give a voice to the millions (if not billions) of people around the world with this condition NOT disease.  As much as these experiences are unique to me and my family, I’m sure others have experienced it too.  My aim…to shine a light on it and raise awareness – simple and challenging at the same time but worth it!

Hydrocephalus: Waiting for an upcoming appointment…

Read this if you’d like to gain a better understanding of the mindset of someone with Hydrocephalus, waiting for an upcoming appointment. (Generally speaking, of course, as we all approach situations differently). I posted yesterday that I’m feeling “anxious” about my upcoming consult tomorrow. Truth be told, there’s probably...

Hydrocephalus: Loneliness, a feeling which consumes you when you have an invisible condition. But, have a look at this!

The very word “invisible”, speaks volumes if you care to notice it. To look at a person with Hydrocephalus, you wouldn’t know they had it, unless they’ve told you, or the signs are unavoidably visible. Also, many of us, live our lives feeling very isolated and most of the...