Skyewaters

I blog about Hydrocephalus to give a voice to the millions (if not billions) of people around the world with this condition NOT disease.  As much as these experiences are unique to me and my family, I’m sure others have experienced it too.  My aim…to shine a light on it and raise awareness – simple and challenging at the same time but worth it!

Hydrocephalus: How seriously do you treat your “triggers”?

Some “triggers” aren’t necessarily recognised as anything serious by the medical professionals we deal with. If this is the case, are we meant to ignore them too? Take for instance weather changes such as barometric pressure. Even as people with Hydrocephalus, it doesn’t affect all of us in the...

Hydrocephalus: Sharing the joys of upcoming brain surgery and a lightbulb moment.

A while back, I wrote a post titled, “When the thought of brain surgery “excites” you“. It would probably seem like a strange thing to write about but the preconceived ideas of a title like this, at first sight, couldn’t be further from the main reason behind it. Walter...

Hydrocephalus: Do you ever downplay your condition? If you do, do you think it affects how others react or respond to you?

Some would say Hydrocephalus is not a big deal.  I know quite a few people who have actually said this to me but, I also know quite a few who would claw your eyes out for uttering those words. (Ok, maybe not that extreme but they’d definitely take offence). ...

Hydrocephalus: Do you ever wish you could just go back to before you knew you had Hydro?

I know that there are many people who are born with Hydrocephalus so, this question doesn’t really apply in that instance.  It’s more posed at people like me, diagnosed at age 29.  I had learnt all the basic skills I needed by then, had no difficulties of note and...