Hydrocephalus: I reckon having someone in your corner is better than the alternative.

If you’ve been following my blog, you’ll know the challenges I’ve faced/am facing, just to be heard.  Being told at my last consult, which always feels like it’s the last, “We’re just not going to operate on you because, you look fine and your tests show that too“.  Going...

Imagine having a way to communicate your invisible illness to those around you visually…

This morning I woke up at 4 am with the start of an excruciating episode of stomach pain (only too familiar to me). I lay waiting to see if it would escalate while praying that it wouldn’t. However, that was a futile prayer because sure enough, it was one...